The following is written by Skinwriter Anonymous. I wrote some thoughts on the matter below his story.
Some breakthroughs fixing my Dermatographia urticaria by Skinwriter Anonymous (19 july 2014)
I spend much time going through all message boards, articles and publications since the day I discovered I had dermatographia, trying to find a solution or at least a clue that would cause some relief. I feel obligated to type out my own experience and add a possible solution (or at least a clue) to what is already known about this condition.
* Just skip to the last 3 paragraphs if you want to avoid my tearjerker life history ramblings:
A little history. I’m a 30 year old male and about 1.5 years ago amidst a very stressful period I developed dermatographia. It started on a random day: someone noticed my face and neck were red. I looked in the mirror and it was swollen. I figured an insect bit me or some other allergic reaction. Later that day I found out that wherever I would touch myself: it would get red, swell and start itching. A mosquito bite type of itch, impossible to ignore.
Not familiar with dermatographia and having a history with allergies I figured some substance was on my hands or in my direct environment that caused all this. For a week I spend most of my time washing all things in my environment, my clothes, my bed and so on to get this ‘stuff’ that made me allergic out of my environment and system. It didn’t help, my skin condition only got worse: the smallest touch (where before I had to scratch) would make my skin itchy and swell like an insect bite for 30-45 minutes. After a week it got so bad that changing clothes, walking, sitting, shaking someones hand or anything else that created pressure on the body would cause itching and swelling from hell on and near the area touched.
Sometimes at night I would scratch myself by accident causing swelling and itching, I would scratch more, more swelling and itching and by the time I realized what I was doing 1⁄3 of my body would be swollen (legs, back, buttocks, stomach area!): the appearance identical to that of someone who had scar tissue from a severe fire accident. Swollen, thick, itchy hot skin. Terrible.
By then I realized it was not a normal allergy, not caused by some external factors and the internet taught me about Dermtographia. I could write texts on my skin! After hours (days!) of obsessive internet research most people seem to indicate it is food related so the months that followed I focused on food: changing diets, leaving out certain ingredients, trying oats, adding vitamins, trying different brands of mineral water: all ideas and tips available on the net I tried them. Nothing worked. (Only thing I did notice that for some reason my symptoms got worse after eating a lot of processed sugars. Drinking cola or eating McDonalds for example would almost instantly create an itch attack causing my skin to swell much faster than normal.).
After some month where i could find nothing that would make any _substantial_ difference I decided to move on to the next phase: antihistamines: I bought a random type of antihistamine (‘first generation’ as I later learned) and wow: no more swelling and itching after 30 minutes taking a small pill! What a relief! No more itching! But within a few hours I learned about the downsides: I got tired, decided to take a small nap.. and woke up 24 hours later! Heavy sedation from a pill just a few millimeters big for almost 48 hours. Not good!
Second disadvantage: although no more itching and swelling: the anti histamine seemed to make my skin even more red when touched and not just red: a more unnatural type of red that would last for an hour instead of 30 minutes: touching my face, neck or hands by accident during the day really made me look like a clown.
During this period I also did several blood and urine tests even an allround STD test: all came out normal. I soon discovered second generation antihistamines (that would still make me tired but not as much) but unfortunately they all caused my skin to turn orange instead of red when touched. If you intend to take antihistamine daily take a half or even 1⁄4 of a pill instead of 1. Same effect after a week of buildup, your body will not become resistant to it as fast as when you take 1 a day and less side effects (sedation). Hard to believe such small pill can be so powerful but it works…. If after some months the effects of your antihistamine become less: switch to another one.)
After 9 months or so I got used to my condition, quit using antihistamines and ‘trained’ myself enough to avoid most things that would cause symptoms. (interesting how your brain adapts, from how you shave, sit down, take of your tshirt, touch your neck, learn to not scratch yourself when you itchy etc. You automatically adapt your habits to avoid skin pressure). Except for public embarrassment (shopping for clothes and trying them on in the shop? or getting a haircut anyone..?) I got used to it.
A month ago i developed a urinal tract/bladder infection. Nothing special, just painful when peeing. So I went to the doctor and he prescribed me an antibiotic. 2 pills a day for 7 days. Simple treatment. I took the pills, 3 days later my bladder infection symptoms went away. All good.
Next day I walked on the street with a girl and we were fooling around and as a joke she grabbed me by my neck with her hand. She didn’t know I have dermatographia but I of course knew that 3 minutes later my neck would be so swollen and red it would look as if someone had tried to strangle me…oh boy. 3 minutes later i looked into a mirror to see how bad the ‘damage’ was and i was stunned: just a few spots where her fingers touched my neck but nothing severe! 5 minutes later even those spots were already gone and my neck was back normal!
I quickly found myself a paperclip and did some scratch tests on my arms and hands: skin would still become a bit more red compared to a ‘normal’ person but no more swelling and itching!! And 5 minutes later the red would already disappear. Conclusion: my Dermatographia disappeared for at least 90% compared to a week earlier!!
My obvious conclusion is that there is a relationship between the antibiotic treatment and the disappearance of most of my Dermatographia symptoms. During my research days I did find a few messages on several messageboards claiming people’s symptoms went away after ‘their infection was healed” but didn’t put much weight to it.
Another thing that changed since my small antibiotics treatment that could be a clue: bowel movements. I wasn’t really aware I had a problem with this (they were irregular and I always had issues with my bowels but have a terrible diet and fast lifestyle so I figured this was the cause) but since my antibiotics treatment I am ‘regular’ and somewhat ‘normal’ again.
This leads me to 2 conclusions:
Although no signs of any infection, viruses, yeast fungal issues or other things were found during lab tests I did earlier: Maybe somewhere in my system there is/was a bacterial infection that also caused my dermatographia symptoms and it got fixed with the antibiotics treatment. Maybe it was a bacterial imbalance in my bowel system causing my Dermatographia symptoms and it got fixed with the antibiotics treatment. The latter seems most logical because I suppose any other infection in the body for over 1.5 years would have caused some symptoms (pain).
I hope this information may be useful or a piece of the puzzle for someone out there trying to solve the mystery of this condition that seems to come and go without a clear reason.
Sincerely,
Skinwriter Anonymous 19 july 2014
Thanks for your input, Skinwriter! This is really interesting because I’ve actually heard the opposite: that antibiotics caused dermatographia. It could be that it was an allergic reaction to the antibiotics–I myself am allergic to penicillin and got a rash the first time I took it–and maybe the antibiotics themselves weren’t the cause. It would be interesting to learn that dermatographia is linked to infection, although I think since it is so different for every individual, this is likely not the case across the board.
I do believe that dermatographia is linked to toxicity, so having increased bowel movements definitely helps since your system is moving–getting rid of waste. Great news that your digestive system is working well ;’) ! I’ve also noticed a link between processed food and itchiness. Since I started eating healthier (more fruits and veggies, no processed foods, drinking tons of water, and the biggest thing: no gluten!), my symptoms have eased up. It really works! Especially since certain foods can trigger an outbreak. Doing an elimination diet to find out what you’re allergic to is extremely helpful. Personally, I avoid antibiotics and haven’t taken them for years, but by all means, it may be worth a try since it worked so well for Skinwriter Anonymous!
For more tips on how to naturally heal dermatographia, check out my blog post here if you haven’t already.
I also recommend products to help the itch on my Dermatographia page :=)
Please leave a comment below if you’ve found a link between dermatographia and antibiotics. I’m curious to learn more!
Image courtesy of Skinwriter Anonymous. This shows how quickly the welt goes away since his symptoms have almost disappeared after taking the antibiotics.
171 Comments
Michael McKee
on August 8, 2014 at 1:55 amMy name is Micky,
I am 22 years old and only recently have I shown any symptoms of Dermatographia. Several weeks ago I began taking the Antibiotic (Amoxicillin) for an infection I was having. The infection died down and my prescription ended. Several days later I began to itch all over my body, and I wasn’t sure why. I assumed it was a food allergy or the hot weather. After several days of this is began to notice the I developed welts very easily. After searching I discovered Dermotographic Urticaria and was later ‘diagnosed’ by my family doctor. It wasn’t until I read this article that the lines between the antibiotics and my condition connected for me. This was several weeks ago and I have since been off the Antibiotics but my symptoms haven’t lessened other than now I know what it is I can manage it better. Thank you for this article; I hope my account of it all helps.
Micky
Ariana Page Russell
on August 11, 2014 at 10:30 amHi Micky, thanks for writing! This is helpful–it confirms my suspicions that antibiotics and other medications can trigger the onset of dermatographia. Please see my post for more suggestions on how to treat dermatographia. Good luck, and please keep in touch! Let me know if you experience changes in your symptoms as time passes and you’re off the antibiotics for a longer period of time.
Lucy Smart
on December 28, 2018 at 2:52 pmHi Ariana,
I’ve had dermographism for 18 years and the only way i’ve found to manage it is taking cetirizine hydrochloride daily. However, I’ve just been taking an antibiotic called Clarithromycin and for the duration I took it for I didn’t need to take the antihistamines and had no itching. This is a first! I’m so curious to know why! Sadly i’m needing to take them again now 🙁
Lucy
Tracy
on April 6, 2019 at 12:00 pmHi, i developed this condition a couple of months ago, brought on by an antibiotic. At first I thought I had an allergic reaction to something I had eaten the day before as I started to itch in random areas and scratched areas were very red and very hot to touch. Luckily I had some over the counter antihistamines which helped a bit but I still itched but not as much. After a few days of looking online, I came across this very website and realised this is me, these are my symptoms.
I decided to see my Dr, to say she was impressed with my self diagnosis was an understatement. Anyway she prescribed me an antihistamine called Fexofenadine 180mg, since then I haven’t looked back, I may get the occasional itch, not very often though, the only symptom I can show for it is the skin writing which can be quite amusing. I now have this life changing tablet on a repeat prescription for life. I would urge anyone who hasn’t already been given these tablets to go and see their Dr ASAP.
Thank you
Tracy
Jonna Marie
on March 7, 2017 at 6:20 pmAntibiotics has only helped me as well at the emergency and urgent care centers, Now that I am in my 30’s I made my self go to an allergist. I had bites as a child and into my adulthood and would occasionally swell..well within the past 6years the infection would go into my blood and I was even hooked up to an antibiotic IV..I hate benydryl or anything that makes me sleepy..mother of 3 : j
Cay
on March 1, 2019 at 11:12 pmHi! How are you faring with Dermographism? I took amoxicillin a month ago for a uti, and developed it
A.
on August 19, 2014 at 5:18 pmI’ve had dermatographia for as long as I can remember. I am 22 now. It’s interesting to see the differences in people who developed it later in life; to me, it’s not even a problem (most of the time), and I just found out it was even a condition a couple of months ago.
If dermatographia can be caused AND relieved by antibiotics, it sounds like it might be due to a gut bacteria imbalance. I’d be interested in seeing how taking probiotics might affect its symptoms. I, myself, haven’t noticed a link between antibiotics and my own dermatographia, but I’ve suspected for a while that I have a bacterial imbalance. But, again, I seem to have been born with it, so it might be different for me!
Ariana Page Russell
on August 28, 2014 at 12:39 pmHi A, thanks for your input. I’ve actually found that taking probiotics helped ease my symptoms (along with eating well and drinking lots of water). There are so many things linked to gut health, it wouldn’t surprise me if that’s it.
Welcome to SkinTome ;’)
Jen
on January 21, 2020 at 6:55 amAfter taking one probiotic I began to have these welt marks. So it definitely has something to do with the bacteria. I had this for two years, and eating sweet seems to make it worst.
Ariana Page Russell
on September 19, 2014 at 2:05 pmThank you Ms George! Glad you found us ;’)
Amanda
on October 22, 2014 at 12:17 pmVery interesting information.
Following this train of thought, could it be possible that the organism responsible for infection may be living in our bodies already? Then certain triggers, such as stress, changes in body chemistry, or exposure to certain synthetic chemicals could potentially trigger “outbreaks” by providing optimal conditions for the organism to multiply.
This puts me in mind of other types of infections such as yeast infections or H. pylori (bacteria in the gutt often responsible for chronic heartburn and ulcers).
Bee
on November 23, 2014 at 8:27 amMy feelings are that antibiotics and food do not cause or cure dermatographia as such. I am with A and suspect that it’s more to do with the general health of the gut. As we know, antibiotics, food and stress all have an impact on the state of our digestion. Healthy gut flora mean we absorb the right balance of nutrients from our food. If antibiotics appear to cure or cause dermotagraphia maybe it’s because they cause a change in the gut environment which then effects illness and other conditions of the body…including skin reactions.
Ariana Page Russell
on November 23, 2014 at 5:41 pmThanks for your input! I agree, gut health is important–not only for nutrient absorption, but for general digestion and elimination as well. Toxins put a lot of stress on our systems! Also, each person’s dermatographia is unique, and so are our triggers.
Bee
on November 23, 2014 at 5:59 pmYes, right, we are all different. I know mine started because of stress but I consider my diet very healthy. I have no idea what effects it one way or another. I suppose anything that our system considers an overload – stress, a type of food, stimulation etc.
angela
on January 15, 2015 at 8:08 pmOk so I am really hoping the anonymous person that wrote this can tell me what antibiotic he took because the exact story that he had is what happened to me pretty much. except I started this 6 years ago and I was in the hospital and they gave me an antibiotic that I was allergic to, it was (Ancef) and I broke out into hives and they had to give be shot of benadryl. Ever since that day I had permanent hives/dermatographia. I also have had tons of bladder infection and was thinking the 2 might be linked but cant figure it out and Dr.s keep telling me nothing has to do with the other. So anyways I have taken plenty of antibiotics for bladder infections and sometimes those antibiotics done even work and they have to give me a different kind. Maybe they have been avoiding giving me a penicillin antibiotic becasue the Ancef one I was allergic too, but maybe I really do need a penicillin kind of an antibiotic. does anybody have an idea of what I should try???? please I really am feeling hopeless like this is going to be my life forever….
Ariana Page Russell
on January 16, 2015 at 6:01 pmI will let you know if I find out what kind of antibiotic he took! In the meantime, have you tried cranberry pills? If I feel the slightest feeling that I might be getting a bladder infection I take those and it prevents the infection all together.
For the dermatographia, you really just have to experiment with different treatments. The general consensus is that there’s no cure. It does go away sometimes, but for reasons unknown…
angela
on January 17, 2015 at 12:56 pmYes I have tried cranberry pills for years and they do not work anymore I have taking bottles of them, even though it doesnt help with the pain anymore I still take them to promote healthy bladder function and also use D-mannose. D-mannose promotes healthy bacteria into the bladder. I also have used numerous natural remedies. I do not take antibiotics anymore for bladder infections because they usually dont even get rid of it and Im worried about the damage it is doing to my body. So I wanted to start a experiment on my skin when I dont take my meds. I didnt take a pill last night and Im going to write on my skin and take photos, then the next day and next until I cant take the itch no longer. And then see what happens I also want to cut out a food to start eliminating possible allergy so Does anybody have a suggestion on what I should stop eating first, I already went vegan and gluten free for 6 months each and no change so I know it cant be dairy, wheat or meat….soooo what do you think??? thank you
Ariana Page Russell
on January 19, 2015 at 11:25 amThere is a protocol for the elimination diet–you start by having smoothies and stuff to cleanse your system, then gradually re-enter certain foods to see which ones trigger a response. Google ‘elimination diet’ to find a good site for more information, and directions on how to properly do it. If done this way, you can get a really good sense of how each food affects you. Let us know how it goes!
angela
on January 20, 2015 at 11:18 amok thank you I will check it out and let ya’ll know!
Kelly
on July 1, 2017 at 6:03 pmHI Angela…have you had a urine culture done? If you do NOT have bacteria in your bladder, you are NOT have bladder infections. It sounds like you are describing interstitial cystitis. There is a medication used for IC and its call Elmeron. Another successful treatment that takes away the pain for a reasonable period is a bladder distention, a simple procedure they do in the OR. I would as for a referral to Urology if you’re urine culture is negative! Good luck to you ! 🙂
Andrea Rollins
on July 14, 2018 at 6:10 pmI have dermatographia and also had a severe allergic reaction to penicillin as a child! (So bad they admitted me to the hospital) I wonder if there is a link there?
angela
on January 17, 2015 at 1:06 pmoh yea I do take fish oil and pro-biotic too just to make sure my gut is all in order!! I am definitely not perfect though I eat a lot of sugar yes its organic but that doesnt mean its ok and I bake, I loooove to bake so a lot of baked bread, quiche’s and veru good quality coffee. But you know all of these things are not good for your health even if I use the highest quality ingredients!
angela
on January 17, 2015 at 1:07 pmdoes anybody think this could be the cause SUGAR????
Ariana Page Russell
on January 19, 2015 at 11:26 amIt’s so different for everyone! I know sugar definitely makes my skin more itchy, but some people are okay with it.
anna lane
on February 24, 2015 at 5:03 amI hav many white scars from going up on farm and other injuries. I need help
Ariana Page Russell
on February 26, 2015 at 12:07 pmHi Anna! Thanks for the note. Have you spoken to a doctor about your scars?
Dolphin
on March 25, 2015 at 5:38 pmFantastic entry! I’m gluten-free, too, and thought it was awesome how you mentioned it. I’d always thought antibiotics were a cause of dermatographia, so this was very interesting. Wow!
Ariana Page Russell
on April 2, 2015 at 4:44 pmHi thanks for the note! I think gluten makes my dermatographia worse, and I’ve heard others say the same thing. Sugar too!
Andrea Rollins
on July 14, 2018 at 6:11 pmYes, I’ve noticed the exact same thing. I can eat it, but I’ll pay for it with being extra itchy afterwards.
Jen
on January 21, 2020 at 6:58 amAfter taking one probiotic I began to have these welt marks. So it definitely has something to do with the bacteria. I had this for two years, and eating sweet seems to make it worst.
Tetchjan
on May 2, 2015 at 9:25 amMy dermatographia started when I was about 7. I got used to it by the time I was a teen and had adjusted my behavior (rubbing instead of scratching and digging my fingernails into my palms to offset the painful itching whenevery hair was done) to avoid most of the symptoms. In my 30s I started taking a multivitamin called Alive and super B complex vitamin supplement. One day I realized my dermatographic symptoms were gone. I thought I’d grown out of the condition just as I’d seemed to grow into it. However, years later I stopped taking the Alive and B vitamin supplement. Within a year my symptoms were back with a vengeance. I started to take Alive and super B complex again and within a month my symptom severity had reduced by half. Upon research I found that B vitamins help support your immune system. I can’t say for sure that Alive does anything but I was desperate to combat the symptoms and went back to what I was taking when my dermatographia was subdued. After reading the other comments here I also recall doing a 30 day round of Colonix cleansing system during the time I was taking the supplements. I hope this helps.
Ariana Page Russell
on May 6, 2015 at 12:30 amThanks for letting us know!! It’s always good to hear what works for people :^)
Moriah Giordano
on May 12, 2015 at 11:47 pmMORIAH says:
May 12,2015 My dermatographasia started after taking antibiotics for approximately
30 days. I had an oral infection caused by a dental implant. Nothing
seems to help except loose clothing and cool showers. I am going to try
a probiotic and B vitamins as mentioned by others. Will keep the site po posted.
Ariana Page Russell
on May 25, 2015 at 2:32 pmYes please let us know how it goes! Thanks :^)
Maggie
on July 11, 2018 at 6:15 pmSeeing that this is 3 years later I doubt you even get on here anymore but I just recently got the same thing starting 2 weeks ago I’ve been on antibiotics on and off for several months for abscess tooth and all of a sudden I started popping up hives when I would scratch my skin or if I rubbed up against something too hard. Wondering how long yours lasted if it ever went away or whatever I hope it did.
Pat
on February 15, 2019 at 7:26 pmLast month my wisdom tooth was extracted and was on amoxicillin. 2 weeks later hives. Now stated by doctor that it s dermographism as all blood and urine is good.
Rachel
on May 25, 2015 at 11:58 pmHello, I too had an allergic reaction to an antibiotic and for a week or two now have been super itchy. I notice the welts and pretty much diagnosed myself with dermatographia, and thought it would go away as a side effect soon. To my dismay I am being proved more and more wrong the more I research this. I took Macrobid, aka Nitrofurantoin. It’s the only thing I’ve ever had an allergic reaction to. Going to make an appointment with my dermatalogist tomorrow. Don’t know if there’s much she can do it sounds like. This is really bumming me out. I’ll post more as I know.
Ariana Page Russell
on May 29, 2015 at 12:38 amHi Rachel! Sorry to hear about your unfortunate reaction to antibiotics. What did your doctor say about the welts? The good news is, I have heard people say that it can go away spontaneously, just like it appeared. Let us know how it goes!
Lori
on June 25, 2015 at 12:20 amI was put on Macribid for a bladder infection. I had to take it for 10 days. On the 9th day I broke out in really bad hives everywhere & was having trouble breathing. The doctor said I had a severe allergic reaction to the drug. I was put on a antihistamine & the doctor said I could expect more hive flarups for up to 2 weeks. He was right but they weren’t as severe & the antihistamine did help. It’s now been 3 weeks & I’ve started getting red streak/scratch type marks on my skin. They are really itchy. I would think the antibiotic would be out of my system by now. Did you find out any new info on your condition?
Ariana Page Russell
on July 2, 2015 at 1:37 pmHi Lori, Thanks for writing! I suggest you try the tips I’ve written about here http://skintome.arianapagerussell.com/what-to-do-with-the-itch/ , and read through the comments–there are tons of suggestions. Hope that helps, let us know how it goes!
Sara
on November 14, 2016 at 4:30 pmHi Lori,
Chiming in so you don’t feel alone. I got dermographism twice, both times after taking Macrobid. didn’t have the same severe reactions as you, my symptoms started about a week after taking and then the dermographism stuck around for 3 years the first time and now into a year on the second time…
Jenna
on June 29, 2018 at 6:58 amI am trying to find ways to stop the itching/hives AND also find the underlying cause of this. The doctors and dermatologists have not been helpful further than telling me what I already knew by self diagnosis. I have Dermatographia and uriticaria…. but why? I’ve decided to attempt the cleanse/detox idea and then keep a food diary. I also looked back at medications to see what may have caused it. I’m thinking maybe Macrobid or Fluconazole because I took both before my major outbreaks but also took naproxen. In September 2017 I went to Jamaica and swam in the ocean with millions of tiny jellyfish…. weird feeling. Went back to my room on the ship and showered, only to find that my skin got really inflamed and itchy. I blamed the jellies, took Benadryl for 2 days to deter the itch, and didn’t think much of it. Came home and was itchy again for quite a few days and took the same meds and it cleared up. Was off and on through December. During a flare up, I also had a headache. Sat down to eat dinner and took the first headache med I could find (Naproxen) which I had never taken before but knew it was like ibuprofen. Within minutes I felt a sharp cutting sensation in my throat while swallowing a bite of food, plus my mouth and lips started itching and swelling. I stopped eating (thinking it was something in the food) and went to take two Benadryl and laid down which resulted in falling asleep. Woke up the next morning with extremely swollen face, tongue, and throat. Still itching and had hives everywhere… also itching in all mucous membranes. Difficulty breathing made me go to urgent care where I was immediately given Benadryl shots and steroids. Swelling subsided but returned after 5-6 hours. I took Benadryl and used ice packs off and on for 2 days, and soon the swelling was subsiding…. but left me with something worse. All mucous membranes began to hurt. I developed canker sores all inside my mouth and a completely raw vagina (inside). (Sorry if TMI) To the point that I couldn’t eat without extreme pain and urinating had me in tears and bleeding. My skin was literally peeling off in my mouth, etc. I was attributing all this to a food allergy. After some prescribed steroids and antihistamines (Zyrtec/Benadryl) it went away within about a week. Avoided the food I had eaten previously. Continued to have skin itch off and on. Still blaming jellies… thinking it could be something else. Googled and had panic attack based on all the possible diseases I may have lol. February comes around, staying at my MILs house to dog sit. Particularly itchy. Another headache. Another Naproxen. Within minutes I was swelling, flushing, difficulty breathing, presyncope…. seriously believed I may die. Got in a cool bath and tried breathing slowly to calm down. Mouth got itchy and started swelling…. got out of the tub and took two Benadryl. Went to bed. Woke at 4am choking on my tongue. It was supposed swollen that I had teeth imprints in the sides. My face was almost purple and so itchy/swollen. Went to ER. Never even sat down in the waiting room. Was given IV fluids, antihistamine, and steroids. 8 vials of blood drawn. Doc called it a naproxen allergy. Makes since right? Called the itching and hives Dermatographia uriticaria. I literally can make a smiley face on my arm and it swells into a smiley welt lol. After a couple days the swelling and itching had made its way south as well. Again the skin in my mouth, etc was burning and raw. Canker sores all in my mouth and under tongue. Intense pain. No sores vaginally just peeling raw skin internally and extreme pain/bleeding from skin peeling. This time it took almost 2.5 weeks to heal up. My point here is the Dermatographia never seems to leave completely and sometimes I have flare ups. Right before my cruise I had taken macrobid and fluconazole. First time ever having Dermatographia and it’s never gone away completely. Both times taking naproxen my hives, angioedema, and swelling went insane. About 3 weeks ago I started macrobid again and took a fluconazole on the last day (of 10 days). Within 24 hours, my hives and itching were increasing. After 48 hours…. it is so extreme that I scratched myself to bruising and bleeding. Of course every place I scratch makes my hives spread and get worse. But since February this is my first real flare up. I’ve avoided all meds this time except for antihistamines and so far I haven’t had any mucous membranes issues. Never taking naproxen again …. I’m now going to avoid macrobid and fluconazole as well. Has anyone considered that this may be a sulfa induced condition? I know I can’t consume large amounts of sugar, but other than that… this skin/immune condition is a mystery to me. I’ve not even eaten breakfast yet today or had my coffee because I’m worried I’ll induce the itching and crazy hives. The itching drives me mad… especially when it’s on my palms or soles of my feet. If anyone has any sites or read anything that has helped them, Please let me know. Sorry this was so long…. just wanted to be detailed and see if anyone else could relate at all.
Rebecca
on May 2, 2019 at 8:27 pmPlease have you doctor check you for Stevens Johnson Syndrome. It sounds exactly like what you’re describing and can be caused by medication. It can be life threatening if not handled correctly.
Jenna
on May 2, 2019 at 8:48 pmOkay I will ask them to check for that. All of my bloodwork has consistently came back normal so there must be something specific they need to look for?
Jessie
on May 2, 2019 at 8:56 pmYou might also want to research MCAS (Mast Cell Activation Syndrome). My daughter’s skin issues began at age 9 -she had been complaining of migrating joint pain and fatigue then got strep a few months later and was put on abx. This was a “perfect storm” and everything got worse including the joint pain and swollen joints, muscle pain, fatigue, stomach aches, headaches, itchy rash and hives, which continued on into Dermatographia for the past 3 years. She actually had high anti-nuclear antibodies, which is an indicator of an autoimmune disease and she was misdiagnosed with systemic lupus. She got worse on the immunosuppressives however and we were informed that it was not lupus and she continued to struggle. To make a very long story short, after nearly a year of illness she ended up being diagnosed with Lyme disease and coinfections along with a neuropsychiatric autoimmune disease caused by strep and/or Lyme. MCAS can be related to lyme or, I believe, a dysregulated immune system in general, which can be related to underlying stealth chronic infections and/or an imbalance or lack of nutrients. (She was also deficient in iodine, ferritin, vitamin D and zinc). I have read that there could be a relationship between antibiotics and dermatographia. My daughter experienced the skin issues after taking amoxicillin but she had taken it earlier in life without problems and the doctors said it was not an allergy. Once we found out she had lyme disease we learned about something called a herxheimer reaction, which happens when your body is unable to filter out the bacterial die off fast enough causing a worsening of symptoms. She is doing much better after 3 years of tx but she still has dermatographia. She has taken Dhist (a natural antihistamine), and some other natural products and some people say a low histamine diet helps. I guess that’s a lot of food for thought. Best wishes!
Ariana
on May 19, 2019 at 5:16 pmWow what a story! Thank you for sharing Jessie! It’s always so interesting to hear the different triggers for dermatographia. It really varies but is usually linked with some kind of gut/microbiome imbalance, so what you wrote doesn’t surprise me. I hope your daughter is doing great. She sounds like a real trooper!
Tracy Elmer
on May 6, 2019 at 10:49 amHi, I discovered this condition in February this year, caused by antibiotics for a bladder infection. After a visit to my Dr, I was prescribed Fexafenadine 180mg, it has taken several weeks to get into my system completely and now I have no symptoms of Dermatographia at all. I am now on these for the foreseeable future.
I can only recommend that you see your Dr and ask for this very strong antihistamine. Normal over the counter antihistamines will help but they won’t suppress the symptoms.
Good luck!!
Regards
Tracy
Jenna
on May 7, 2019 at 6:51 amFexofenadine is Allegra which I already take one a day as well as doxepin at night. I feel like they work relatively decent, but I want to find the underlying cause and maybe end this issue forever…. wishful thinking.
Candice Craft
on August 24, 2017 at 8:11 pmI wrote a blog on this in 2013 addressing the same issue! Macrobid caused my hives and dermographism as well.
Sara
on October 16, 2017 at 11:40 pmI know this thread is old, but I HAD to chime in. I got dermographism twice, both times after taking Macrobid. The first time the doctors said there was no way that it was the antibiotic, just a coincidence. I did lots of natural cleansing and eventually got rid of it for a few years. Then one UTI and a dose of Macrobid later, it was back. With a vengence – been two years now and have not been able to budge it even with all the tools and tricks I learned from last time.
Sarah
on June 28, 2018 at 2:46 pmOMG, Sara! I’m a Sarah too, and my dermographism developed 4 days after I finished a course of Macrobid for a UTI — I’m convinced that the Macrobid caused it. Sorry that we’re in the same boat 🙁
That was 4 months ago and not very hopeful that my dermatographism will ever go away 🙁 The crazy welts & scratches are so embarrassing. I’m a wedding photographer; it’s impossible to avoid incidental scrapes & bumps while working, so I have to wear long sleeves even in the hot summer weather when I’m working or I look like I’ve been attacked by a bear!
A nightly Allegra pill helps greatly with the itching, but the actual welting/hiving response isn’t affected, in fact the marks seem to look worse, but as long as the itching isn’t so bad, I’ll take the crappy tradeoff…
Just wanted to let you all know that your stories are really helpful — it makes me feel less alone, since I don’t know anyone else with this problem!!
Antonella
on November 22, 2019 at 8:54 amOmg me too and my allergist said he had another client that same week with same exact thing. UTI on macrobid and later diagnosed with Detmatographism.
HA
on June 21, 2018 at 6:11 pmYou know it’s funny you say that you’ve reacted to an antibiotic. I’ve had dermatograohia for 11 years now and at the time I developed it (I was 14) it literally happened after a 3 month course of a tetracycline antibiotic for my acne. One day i woke up all in hives, constantly itching, I was swollen…my feet were swollen, hands were swollen, face was swollen. I stayed like this for two weeks and my GP didn’t have a clue he just said it’s an allergic reaction to the antibiotics I was taken. A few months after that I still had the hives which were coming and going and then I was referred to a consultant dermatologist who then diagnosed me with dermatographia. But when I asked her could it have been triggered by my course of antibiotics she said no, the cause is unknown. I’ve been living with this condition for 11 years and let me just say it’s been hard especially during stressful times I’ve realised it’s so much more worse. A few months ago I was put on a trial of medicines (Loratadine (antihistamine), Ranitidine (H2 receptor antagonist) and Montelukust. I took these medicine for 6 weeks and they were helpful, now I’m waiting to try out UV light therapy hopefully in the next few months apparently it’s helpful too. But in the mean time it is hard… especially to control the itching. I particularly find my dermatographia is worse when I’m stressed and after hair removal also which is annoying. But hopefully I am also planning to have a change in my diet and try to live a healthier lifetstyle. I hope it works I’ll let you all know how the uv therapy goes!
ELLEN
on November 20, 2018 at 12:26 pmMine was caused by Macrobid as well… It’s been a week already, very severe.
Erica
on June 16, 2015 at 1:56 amHi. I recently started getting these symptoms. I noticed it after taking metronidazole. So I am not sure if this caused it or stress. Since I did have a very stressful event in my life just about the same time as I took this medication. I have yet to see a doctor but I will soon as its starting to become worse and embarrassing. If any others have used this medication and had this same reactions please let me know.
Ariana Page Russell
on June 18, 2015 at 1:25 amHi Erica! If I hear someone else mention metronidazole I will definitely let you know. I’m not familiar with that one though. It could’ve been a combination of the medication and stress that triggered the dermatographia for you. Maybe your system just got really overwhelmed… Try doing an elimination diet (see my post about it here: http://skintome.arianapagerussell.com/how-doing-an-elimination-diet-can-help-heal-your-dermatographia/ ) and let us know how it goes.
Angie
on June 19, 2015 at 1:11 pmWow! Great to find someone who listed out what they did, what worked and what didn’t. I was just telling my husband I thought mine could be related to toxicity due to slow digestion. He disagreed but after reading this, I think maybe I’m on the right track. I’ve always had slower digestion. I have GERD and IBS. The GERD is probably worsened by the slow digestion. Thanks for your post…this gives me hope!
Ariana Page Russell
on June 19, 2015 at 2:40 pmThanks Angie! It’s so good to hear from you. Have you tried an elimination diet? There could be something you’re eating that is making your symptoms and digestion worse… Let us know how it goes if you decide to try it! Cheers to hope :^)
Shakira
on July 5, 2015 at 2:37 pmHi I’m 31 now,i was born with this skin condition and was told by many doctors over the years that I will grow out of it… never happened but lessened.I was on pilaramine tablets one a day for about a 2 years, and it worked, but i stopped due to it having long term effects on my kidneys.I learned to live with it and really until today thought I was the only person in the world that has this and it actually has a medical term.
Ariana Page Russell
on July 6, 2015 at 11:28 pmWelcome to Skintome, Shakira! Good to have you here :^)
kevin
on August 8, 2015 at 11:36 pmHi. Im 24. I started to experience this condition one week ago. Then i saw this thing “dermatographia” over one of SNS, and i confirmed i am a skin writer. I am glad there is this kind of forum to read on. I will try all the advise from here. I think sugar aggreviates my condition. I ate a lot of sweets this breakfast and this afternoon, even a light rub of my arm to my hair, it became red and itchy. I will try to avoid sugars. It bothers me that a lot of you guys have this for years now. I can’t take it any longer. It is very bothersome and irritating. :’-(
Ariana Page Russell
on August 26, 2015 at 7:48 pmHi Kevin, welcome to the club. Let us know how it goes. We’ve all figured out ways to ease the itch, you just need to find out what works for you :^) Keep trying different things, and good luck!
A. Weber
on October 7, 2015 at 5:40 amOmg I am so glad to find this…My wife is going thru this as i type this. She has been in the hospital for the 3rd night in a row. Her symptoms started 7 months ago at work when she swears she was bit by a bug. She went to urgent care and was diagnosed with celulitus and sent home with antibiotics. She went threw the treatment and few days later she had the redness and itching. So she went to our primary care provider who prescribed a different antibiotic. She had a bad reaction to that one. So they told her to stop taking that one and put her on another one. She went thru the treatment for that one and one day a few weeks later came home from work again complaining about being bit again. She went back to our primary care provider and they referred her to a dermatoligist. When we got there to speak to him and have him check her out he was determined it was bed bugs.sent her home with instructions on how to fight bed bugs. well we actually had our apt sprayed 2 times already before we saw him and he didn’t want to hear it. So few months went by she still been having symptoms off and on. We change our diet we stopped vitamins and prescriptions docs put both of us on. we washed everything in both our wardrobes. at the laundry mat cuz we were afraid the bed bugs were in the basement too by the washer and dryer. Little time went by and she came home again with a huge rash on her leg. she made an appointment to the dermatoligist again and when we got there he was still stuck on the bedbugs. He did a biopsi from the area on her leg. a week went by they called with the results and said that the biopsy in fact was a bug bite. not certain if a bed bug or another bug. We had our apt sprayed again and a month later the landlord followed up with spraying again. So now comes this Sunday. she comes home from work again complaining about her hand and arm itching and red and swelling up. she decided she was going to the E.R. well they couldn’t figure out what was wrong and the nurse said she didn’t feel comfortable sending her home with antibiotics again and decided to admit her over night. they gave her antibiotics again. 1st one didn’t work 2nd one didn’t work. my wife told me when i visited her that they gave her 4 different antibiotics and none of them worked. they gave her benedryl and clariton to stop the itching. yea it helped a little she said but not for long she start itching again. Monday came and they were doing all kinds of tests. limes decease and std tests etc.. they took a lot of blood from her. everything came up negative. I started thinking up all night concerned for my love. I googled if turtles can cause a rash or allergic reaction if scatched. cuz she told me on her hand it looked like she had 3 tiny claw marks. and she did clean our turtle tank a few days earlier and i thought just maybe that was it. well when i googled that i started reading and seen the word dermatographia. I read on and watched a few videos on youtube. after that i was convinced that this was what was going on. so i called the nurse at 3am and asked her to tell the doctor to look into it. well Tuesday comes wife calls and says she is going to be discharged in the afternoon. afternoon comes and she ended up having diarheia so they were afraid she got cdiff from all the antibiotics they had given her on Sunday. so they decided they were keeping her overnight again. when i got to the hospital to visit again. I was surprised to see her in isolation. i started telling her what i found on the web. she called me crazy and just kinda laughed and said i was irritating her. So anyways i asked the nurse if i could speak to her doctor at around 3-4pm. I waited and the doc never came. 10pm my wife was dosing off from the benadryl that she asked for. so i went home and let her rest. I started looking on the internet again about dermatographia because by now i was determined this was the problem and stumbled on this artical. Your testemony was the exact description of what my wife had been experiencing for the last 7 months. And had been telling me and the docs and people at work. Now its 3 am again Wednesday I jumped in my car and drove to the hospital and demanded to speak to the nurse. they put her on the phone for me. I really wanted to talk to her face to face so I could see that she was reading this. well they would not let me up but she did jump on her computer while i was on the phone and read it. she was pretty quite till i said did u get to the part about the bug bite.. and she had this concerned voice and said this is exactly what she has been talking about..I said yea.. I think its a break thru and she agreed. she printed it out and put it on the docs desk for him to see when he gets in in the morning. I want to thank you so much for posting this. If i didn’t find this who knows how much longer this could of gone on undetected. well as i walked out I yelled “It took a High School drop out to figure this out” and at that moment a lot of my own stress was relieved. Not sure about the cdiff I wont know till morning if she ended up getting that. But whats important is shes gonna be o.k. Thanks again! A.Weber
Ariana Page Russell
on October 7, 2015 at 1:27 pmWow what a story! I really hope your wife is okay. Poor thing! If it is dermatographia that she has, make sure she tries some of the things I suggest in http://skintome.arianapagerussell.com/what-to-do-with-the-itch/ . Coconut oil does wonders for the itch. Let us know how it goes, and send my best to your wife!
Val C.
on November 1, 2015 at 2:41 amI’ve read the first few post & they really captured my interest. I’ve been a skin writer for about 3 years now. It all started when I tried taking Niacin supplements for the first time due to wanting to increase my energy level. I had no clue about the whole flushing process. I flushed so badly that I had to go to the E.R. I was given a prescription & a shot. I think some type of steroids (I kind of forgot because around the same time I had a allergic reaction from food I ate at a restaurant which I also had to go yo E.R.). No I’m not sickly & just allergic to the world, they just coincidentally & unfortunate mishaps. Anyway, the prescription had me better, but once it ran out, I noticed that I was having these itching phases that were consistent, then I realized the marks left from scratching each & every time, so of course I Googled it & what do you know I joined what only a small fraction of American’s have… Dermatographia! Tonight the ideal popped in my head that maybe it was the shot that the doctor gave me to cure me of my flushing from the Niacin (you see, I don’t trust shots because who knows what ‘experience’ they’re testing on you), so although it’s 1:30 a.m., I decided to Google it to see if anyone else spoke on the same matter & what I’m hearing is very interesting. After all, of course we’ve all wondered where the heck did the disease come from & “why me!!!” I was just fine until this very odd & aggravating condition came along. Seemingly now, I would agree that it is indeed linked to antibiotics! Now of course I must find out what the heck the name of that prescription was that I took 3 years ago!
Ariana Page Russell
on November 17, 2015 at 11:01 pmWow amazing story! Thanks for sharing Val! Let us know what you come up with. It always blows my mind how much variety there is in what causes dermatographia for different people…. endlessly fascinating, and weird!
Marina
on November 9, 2015 at 5:00 pmWow, this is super interesting!
I am a 17 year old currently going through dermatographia myself. I’ve had this condition for about 2 years now, and I noticed that it usually worsens in the summer. I found that antihistamines, cold baths and ice packs are the best when dealing with the itch. Although it can be pretty annoying at times, I find myself having a love-hate relationship with this condition because I can doodle on my arm and make pretty cool patterns hahaha.
Ariana Page Russell
on November 17, 2015 at 10:52 pmThanks for the note Marina! I hope the love part supersedes the hate part ;+)
Alex
on January 1, 2016 at 11:14 pmThis condition has really lowered my self esteem. If I try a shirt on in a store in the dressing room my entire forehead and neck gets red and I feel like an idiot when I walk out of the dressing room. Sometimes when I sit at my desk at work I’ll prop my elbows on my desk and rest my cheek on my palm. I’ve been called into meetings and had to walk into the meeting with large red palm marks on my face. It’s pretty embarrassing. I’m a single 30/yo male and I’m ashamed to even date because of this condition. So let’s keep this post and these comments going until we figure it out!!! I’ve noticed that sometimes I’ll have an all-out outbreak. A small part of my body will start to itch, then it spreads like wild fire to my entire body! These outbreaks usually happen at night and I remember reading somewhere that this might be linked to cortisol levels? Not sure how cortisol effects the skin though? I have HSV (herpes) and I seriously doubt the two are connected, but just thought it was interesting that this condition (like herpes) sometimes lays dormant then sometimes has full blown outbreaks. I’ve recently discovered that I have Leaky Gut and I’m working on resolving that by eating super healthy and supplementing with L-Glutamine. The skin-gut connection makes a lot of sense if you read up on Leaky Gut. Mostly everybody here had some experience with antibiotics which severely effects the gut bacteria balance. I sporadically take probiotics, but in hopes of suppressing this condition I’m going to take a probiotic with each meal and do a “scratch test” before and after each meal. Just wondering, but has anybody had any luck with an elimination diet? I’ll keep experimenting to try to fix this issue and I’ll repost if I find anything useful. Good luck everybody!
Ariana Page Russell
on January 6, 2016 at 8:45 pmHi Alex! Thanks for sharing your story. I take probiotics once a day (PB8 brand) and it definitely helps my skin and digestion. You’re totally right: there is a connection between our intestines and our skin–it’s all connected. If there’s a problem in one part of the body, that could also manifest in another part. Some people just have severe reactions to certain foods/medicines/products, and because our skin is sensitive, our imbalances show up on there.
I’ve never done the elimination diet, but have noticed that since I started doing all the things I talk about in my dermatographia has gotten much better.
In my opinion, the best way to deal with your insecurities surrounding your skin is to face them. Be upfront about your condition, tell people at work about it. If someone gives you a funny look, just say, “There’s my sensitive skin again,” or whatever you want. It’s been so relieving to share this condition with people. It has helped ease my insecurities about my skin. And if you tell a date about your dermatographia and they’re turned off by it, then screw them anyway. They’re too shallow ;+)
Hope that helps! Let us know how it goes if you decide to try the elimination diet.
Jenny
on January 20, 2016 at 2:25 pmI was diagnosed when I was around 5 (I’m 32 now). I was on every known antihistamine over the years; claritin, hismanale(sp?), benedryl, etc. Nothing helped. I finally stopped taking them a few years later. My symptoms were manageable. I got used to them. Oh, I’d still itch & swell up a lot, but nothing that I couldn’t handle. Then about 8 years ago the intensity increased dramatically! It was unbearable. I’d itch 24/7. It would travel all over my body, & I would usually cry myself to sleep. I put off going to an allergic for a while because they had never helped before. I finally broke down & gave it one more shot because I was about ready to kill myself. It was horrible. My allergist told me to take zyrtec & zantac (it’s actually an antihistamine!). Thankfully this worked for me! I couldn’t believe it! After 8 years, I’m starting to have some “breakthroughs”. I start itching several hours before it’s time to take a dose, so I might have to take a zyrtec twice a day. That’s what my allergist had me doing originally, but I would get tired. I’m not sure if it was from the zytec or not because it’s not really supposed to make you sleepy. So anyway, I was at the GI doctor last week. I was giving him my medical history. He said that they had actually developed a medicine for dermatographia, and that it seems to be GI related. I’m going to ask him about that on my next visit. The reason I went to the GI doctor is because I tested positive for an APC gene mutation which puts me at a higher risk for colon, gastric, & pancreatic cancers. I also tested positive for BRIP1 which puts me at a higher risk of breast & ovarian cancer. I do have some GI issues, but nothing major. I had blood work done a couple years ago, & my vitamin D levels were really low. I’m also read where low vitamin D is linked with irritable bowel syndrome. My GI doc also wants me to keep an eye on my thyroid. Now I say all this because my son was just diagnosed with urticaria today. It’s similar to dermatagraphia, and he’s almost 5 (same age I was when I was diagnosed). We took him to the ER on 12/9/15 for severe croup because he was having trouble breathing. They gave him a steroid & zythromax (anitbiotic). He took it for 5 days, & 5 days later he had urticaria. I’m going to look back at my medical history & see if I was prescribed an antibiotic around the time my symptoms started. I’m going to follow some of your suggestions and see what helps. I’ll post an update on what my GI doc says.
Ariana Page Russell
on February 2, 2016 at 7:34 pmWow Jenny! What a story! That’s so interesting about your son. Please do let us know what you find out.
Have you tried an elimination diet? I’m wondering if a major dietary change would help you since you have GI issues? Anyway, let us know how it goes!
Thanks!
india
on January 21, 2016 at 3:26 amMine shows up when i drink coffee or soda. I think i may have a caffeine allergy. Also it could be toxic due to mold, i have mold in my walls and im trying to move. This could be why the penicillin and amoxicillin aggravate it, because they were developed from mold. Just a thought, but check for mold and watch the caffeine.
india
on January 21, 2016 at 3:33 amMy thyroid also was tested as overactive. I began eating brussel sprouts 4 days a week and less sugar. I also began drinking colon cleanser tea from spring cleaning. I got it from amazon.com it comes in a red and yellow box and it is natural. I also began drinking water and eating more fruits and veggies as well as nonfat plain yogurt. I have not had a breakout since and my thyroid levels are back normal. There is a god and he is good.
Ariana Page Russell
on February 2, 2016 at 7:31 pmYes he is good! I’m glad to hear you’ve found some things that help your condition. I agree, drinking lots of water is very very important–as is eating lots of fresh produce. Thanks for sharing!
JCharles
on February 29, 2016 at 1:41 pmI’m in my eighth week of dermatographia.
I absolutely believe it came from a reaction to Amoxycillin over the holidays.
Now I think my diet and other factors agitate it. It’s awful. Everyday.
I’ve read it can last a lifetime. That’s dreadful to consider. But I absolutely
believe this happened as a result of my antibiotics.
I’m 45, by the way.
Ariana Page Russell
on March 3, 2016 at 11:52 amWow, thanks for sharing! The good news is, once you learn more about what your triggers are you can avoid them. Ultimately dermatographia teaches us how to be very attentive to what our bodies need… Also, I’ve heard stories from people who’s dermatographia has disappeared. You never know!
Nichola
on March 5, 2016 at 8:15 pmI just came on here to see if anyone has found the cure to this. I’ve literally had this ad long as I can remember. I’m 34 now and I know I’ve had this since 2nd grade or earlier. I’d love to hear if someone has heard of some solution. Following…
Ariana Page Russell
on March 13, 2016 at 5:19 pmHi Nichola, welcome! Did you read my other posts about taking care of the itch?
Hopefully this will help! There is no cure, but with diet and lifestyle changes you can ease your symptoms 🙂
Nichola
on March 13, 2016 at 8:33 pmThanks for responding. I am actually not itchy like I think many of you are. If the wind is just right or if a hair falls on my arm for example I may itch my are but I am not itchy if nothing causes it. I just want to know why these mast cells are so sensitive on my skin and not on someone elses.
Tetchjan
on March 14, 2016 at 11:46 amHello, again! I have successfully reduced my level of sensitivity through a daily regimen of Super B Complex. If you research how the body uses Vitamin B you will find that it is key in the proper function of the brain and nervous system. As it is OTC and harmless, I recommend at least trying it to see if your symptoms abate. You should see a difference in 3-5 days depending on your dosage. I take mine with a multivitamin called Alive but medically Vitamin B pills do not require any complimentary supplements to activate their potency.
Sharon
on March 16, 2016 at 8:56 pmHey everyone!
I was diagnosed this week with dermagraphia/uticaria….but after reading all the stories I don’t know if it is what it is now..possibly bc apparently everyone is different.
I was 26 weeks pregnant when my water broke (2-4-16), I went to the hospital and they gave me a TON of meds (Erythromycin, Amoxicillin, Ampicillin, Betamethasone) for 7 days. My son was born at 28 weeks (10 days later). I was discharged 2 days later.
Shortly, before all this i had REALLY dry looking hands and a rash looking thing but just attributed to winter, thought nothing of it…but about day 5 when they removed an IV, my skin was really irritated and had raised white bumps, nobody thought it was anything.
(While in labor my 2yr old had a 103 fever and a nasty viral infection).
2 days after discharge, and being around a very sick kid coughing in my face, I woke up with this huge rash covering my body. It stared on my hands, arms, stomach, boobs, then legs, butt, back, shoulders, and a little face all in the matter of hours!
I waited 2 days to get to a dermatologist and she said this was one of the worst cases of PUPPS she’s ever seen, although my story wasn’t congruent with a typical PUPPS case, she said she could tell by looking at it it was, so gave me prednisone, hydroxizone and some steroid cream. In a day it cleared completely..but by day 2 I got extremely sick bc it weakens your immune system. I was told to get off prednisone immediately.
Went to my regular dr and was told I had bronchitis/virus and to take Augmenten antibiotics for 10 days.
About a week later the rash came back! The derm said no predisone just use the cream, it was gone by the next day.
Now 4 weeks after baby’s born I get the rash all of a sudden out of nowhere. The next derm said, it was probably not PUPPS, but he wouldn’t rule it out and was Uticaria/Dermagraphia with possible Exema. Gave me Methylprednidosnol which cleared it up overnight. But still said to take an antihistamine when needed.
Went to the allergist today and he said was uticeria and dermagraphia as well as a viral infection and should completely cured within 6wks and if I took the meds will not return. He also pointed out it was the most severe he’s ever seen. He said it was unlikely caused by the Penicillin drugs taken bc the outbreaks were slightly different each time (I took lots of pics).
Sooooo sorry for my long story but wanted to be specific with drugs since it might be helpful to others. Side note, I’m 31, very healthy, incredible metabolism, eat a almost completely all organic fruits and veggies, all grass fed meats, barely any processed foods or eat out. But this past month or so I have really been eating tons of sugar (ice cream, chocolates, ect) I’ve never in my life had any issues like this.
My rash was getting increasingly worse overtime, and was elevated on my skin. Every time I scratched it spread everywhere. I don’t see how people have had this for years, I was told it goes away.
Questions:
Has anyone been diagnosed as severe or been given any steroids to clear it up?
Has anyone been sick or have any events they think triggered it?
My itching was so bad I took my boots off while driving to scratch. Prescription antihistamines didn’t help how is OTC meds working for you?
Whats the average age you got this?
Has anyone been diagnosed with anything else–or what drs thought it might be also?
Looking forward to hearing what everyone has to say, this is so interesting!
–Kindest,
Sharon
Ariana
on March 30, 2016 at 5:19 pmHi Sharon,
Wow what a story! Oh my goodness you’ve been through quite an ordeal! As for your questions, I’ve had a lot of people tell me that they think antibiotics caused the onset of dermatographia. I think there’s a lot different triggers that come together though, so maybe it’s not JUST antibiotics. I had an allergic reaction to penicillin when I was about 8 years old, and haven’t taken it ever since. But I think it might have contributed to my dermatographia. Also, when I was a teenager I took Accutane… then shortly thereafter developed the condition. So, I think there’s a lot of stuff going on to cause dermatographic symptoms to manifest!
I haven’t been diagnosed with anything else (I’m very healthy), but my mom has MS, so I’ve always wondered if there’s any connection there.
Check out my post about doing an elimination diet. Scroll down the comments and look for Valerie’s– she recently wrote in with concerns about illness and dermatographia.
I hope you get some answers, and please let us know how it goes!
Alex F
on July 5, 2016 at 2:20 pmHi all,
Great to see all the posts on here.
I’ve had this condition for 14 years now and my story is the same I’m afraid – Very High Dose of Antibiotics = Demographism. Over the years I’ve tried everything but with no success. I’ve also read 10 years of blogs and reports on the subject. My purpose for posting here is purely to share some knowledge about things that I’ve found useful. Although, I feel I may be duplicating what many have said above.
1. Cut the dose
– I take 10mg (citrizine) per day, sometime more if I’ve had a social alcohol session. If I’m worried about taking histamines too much or get too tired, I cut down the tablets to smaller doses into quarters or halfs.
2. Stinging Nettle Extract
– If you want to try to replace histamine tablets with something natural, the only thing I found that actually works is Stinging Nettle Extract. I go to that well known high street herbal shop but they’re not always easy to get.
3. Processed Sugars
– I can only re-iterate what has been said above in that I just avoid them. Not taking them doesn’t cure anything for me but taking them makes it a hell of a lot worse.
– Same for Alcohol, although while I can give up a Ginger Nut, I draw the line at a glass of wine.
4. Further Reading
– This condition has been around since the 70’s at least. Type in “demographism 1970” or “demographism 1980” into google and you’ll see many long winded reports on the subject by the BMA and other bodies.
There are two things I have taken from this blog, the first is that I will try Alive and Super B to see what happens – thanks for the recommendation. I will also speak to a doctor about trying antibiotics, however ironic it sounds. If either of these have any affect at all I will report back. My case is quite bad and consistent so I will be able to confirm very easily.
Regards
Alex
Ariana
on July 7, 2016 at 12:07 pmHi Alex,
Thanks for the info! Dermatographia has actually been around since the 19th century at least. There are photographs of it from way back when ;=)
Have you tried an elimination diet? I write about it here: http://skintome.arianapagerussell.com/how-doing-an-elimination-diet-can-help-heal-your-dermatographia/
Let us know what you come up with in your tests!
Gary
on September 6, 2016 at 10:03 amHello,
I am a 26 year old male. I had no idea this was even a thing until I started noticing it happening to me about two weeks ago. First noticing it on my face and neck. For instance, when I would yawn, causing the area around my nose and mouth to be stretched, the entire area would become a bright red and I could feel it throbbing. I seem to be fortunate in that my symptoms don’t include the itching, and only the temporary bright redness and feeling of a minor sunburn. However it is still very annoying and embarrassing.
I met with my doctor about the condition today and she said I was a “textbook case” of dermatographia, which I basically self diagnosed by using the ‘skin writing’ test. I have no idea what triggered this. I haven’t taken antibiotics in a very long time and the only thing I could think of that could have caused this would be high stress levels, or the introduction of bananas into my diet. I decided to buy some for easy breakfast and started eating one every morning. I don’t really remember the last time I ate one prior to this. So I could be just spewing hot air, but is it possible that I’m allergic to bananas or that eating them changed my digestive chemistry? As far I know, I have never been allergic to anything.
I’m going to be meeting with an allergist sometime this week. Hopefully they can shed light on this situation. I really don’t want to be dealing with this for years or the rest of my life.
I’m just beginning in my quest to find a solution to this unfortunate issue. Any tips are appreciated. Should I try and convince my doctor that taking antibiotics could possibly reverse this issue?
Ariana
on October 11, 2016 at 5:17 pmHi Gary! I definitely don’t recommend you take antibiotics in hopes of reversing your condition. It’s just too unpredictable. Everyone has totally different triggers and causes, so what works for one person might not work for another. In some cases, for some people, taking antibiotics makes the condition worse!
It’s hard to say what caused your onset of dermatographia. Maybe it’s bananas, maybe it’s just a coincidence that the condition appeared after you started eating them. I suggest you try the elimination diet and/or experimenting to see what food/drink makes the redness worse.
Let us know what your doctor says, and good luck!
Gary Hesketh
on November 12, 2016 at 8:46 amHi Ariana,, I had an allergy test awhile ago with the prick of a pin – you know that allergy test? When everything he did welted up he said – well, you’re allergic to everything! I explained to him that I have dermatographia so everything will swell up on my skin. His answer was that he couldn’t do anything and sent me on my way. My question to you is – is there any other way to determine allergies to foods, etc., without the pin-prick method? Thank you for your response. Gary
Ariana
on December 15, 2016 at 4:10 pmHi Gary! The only sure fire way to find out what you’re allergic to is to do an elimination diet. There’s blood tests that’ll give you a hint at what you’re sensitive to, but they can be unreliable. Check out my post about elimination diets here Let us know how it goes!
Margot
on December 2, 2017 at 6:33 pmHi, Gary,
I would suggest finding an allergist with a nurse with a very gentle touch. I was able to get a really good skin prick test done despite having dermatagraphia. They can do blood tests but I’ve heard mixed reviews on how reliable those are.
G
on November 21, 2018 at 1:58 pmHi there so interesting to hear, the same thing happened to me I reacted to the pen before anything else, that day I did not know the cause,however please let mw know if u have been healed and what helped.
Tracy
on February 19, 2017 at 2:23 pmI’m so glad to stumble upon this site and know that I am not the only one! Since early childhood, I figured out I would develop skin redness after bathing and the areas affected would be my face or chest. It didn’t bother me because it’s not itchy and would disappear in a few minutes. However, I recently developed this dermatographia thingy after getting my hair colored (I’ve been having my hair colored for 6 years already). Though I’m not pretty sure if it was the cause because the day before that, I ate lobster balls (though I have already eaten some duting the first few months and did not get any rashes). It got me confused because both are possible allergen triggers and for once I knew my allergies are triggered by certain kind of crustaceans like crabs and an antibiotic called Ciprofloxacin. I was prescribed with Loratadine to be taken on a prn basis (as needed) and it eases the swelling but I don’t take it too often because I hate feeling groggy and weak for 48 hours (if you don’t wake me up, I can sleep up to 48 hours straight, I swear LOL). I also use colloidal oatmeal oil to relieve the itching and it works but eventually, they would be back again. My nurse supervisor (yup, I work in the hospital) said she had the same condition and went to an immunologist who told her that it was caused by stress. She has been in and out of the ER for quite some time and the doctor said there could be something else which might be causing this and figured out it’s stress. Instead of putting her on doses of antihistamine, she was asked to take PB8 (probiotic supplement) on a daily basis. It took her about a month before she started noticing that the rashes are not coming back. I am trying out this regimen but will also try to see an immunologist very soon if my schedule permits. I do hope it works because the itch is really bothering me.
Ariana
on May 5, 2017 at 5:36 pmHi Tracy! How are you feeling now? I actually take PB8 as well and think it helps my digestion a lot. Have you tried coconut oil as well as the colloidal oatmeal oil? I wonder if it would also help… it certainly helps me!
Let us know how it’s going :=)
Ellen
on February 20, 2017 at 7:45 pmhave only had it for two weeks and had not taken an antibiotic for a very long time. I eat too much sugar and bread and plan to cut down and I also just started taking a probiotic. I have no known allergies and also think it’s gut related. I started having heartburn at the same time the skin problem started. That’s all I can think of right now. Just a thought though, to people who actually write on their skin deliberately – maybe you shouldn’t do this. Obviously, your skin is sensitive, so it seems like you should not do something deliberate to harm it. you should treat it gently.
Ariana
on February 25, 2017 at 1:31 pmHi Ellen,
Thanks for the note! Please let us know how it goes when you try healing your gut. I do think the gut plays a huge part in dermatographia.
As for drawing on our skin, we’re actually not harming ourselves at all. It’s totally painless and it helps me (and many others) celebrate something that could be seen as gross/weird. I say, we might as well have fun with it! :+)
Dylan Luke
on March 11, 2017 at 2:50 pmIs there a correlation between childhood bed wetters and dermatographia perhaps?
I am now 25 and have suffered with dermatographia since I was 12, and of course I wet the bed until I was 9. (No shame!).
I only have this suspicion now after reading through this thread and noticing a correlation between dermatographia and sensitive bladders. Whether it’s related to UTI’s, gut flora, antibiotic use and system bacterial flushes.
Just a FYI I have been using cetirizine hydrochloride antihistamines since I was 18 and what a relief! All though I do have concerns that it has played an effect on my overall immune system.
Keilea
on August 12, 2017 at 9:38 pmI was a late bed wetter! And recently got skin writing just before turning 30. No antibiotics prior. I did have a rhogam shot because I’m pregnant and have rh negative blood which I’ve wondered if there’s a correlation between take 2, but I can find no conclusive evidence on what triggers skin writing. I take Zyrtec daily and my skin usually isn’t bothered until it’s time for the next day’s dose.
Dylan Luke
on March 11, 2017 at 2:55 pmAlso I forgot to mention that the dermatographia all began for me AND my friend after my family pet dog Turbo – scratched both of us all over our backs when we were playing/wrestling with him. The scratches are commonly raised when animals scratch humans; even to non dermatographia sufferers. So I wonder whether this triggered a hyperimmune response that developed into a permanent skin condition.
Ariana
on May 5, 2017 at 5:40 pmHmm I haven’t heard of dog scratches to be a cause of dermatographia, but like you said it could’ve triggered an immune response that your system couldn’t handle. It’s always a mystery! I’ve also never heard of a correlation between bed wetters and dermatographia, but you never know!
Have you tried weaning yourself off the antihistamines? Sometimes people do okay with less and less over time, along with some dietary changes of course. You might want to ask your doctor about it.
Good luck!
Krista
on March 15, 2017 at 11:57 amI have urticaria, dermatographia for about four years now that started during a stressful time. For the past two years I have found that after taking a dose or two of antibiotics for upper respiratory infection that my symptoms were minimal to none for at least a couple of months before starting again. This year I took a cousin of amoxicillan and then a course of levaquin. No itching for almost a month and a half before it started back again. Did yours ever return? Has anyone else had a similar experience?
Ariana
on May 5, 2017 at 5:43 pmI’ve heard lots of people say that antibiotics helped their dermatographia go away. But then it does usually return… and sometimes the antibiotics seem to be the cause of dermatographia! So crazy.
You’re not alone in your experience, I do know that :+)
Gabriel Moningkey
on March 30, 2017 at 4:05 pmhello. I’m Bill. I’m Indonesian. I’ve been disease the dermatographia since 2 months ago. I was be grateful when I got this website. so I’m Indonesian so I didn’t really understand what did you guys talk about.. because you used the medical language hehe.. my question is “what is the medication for Fix my dermatographia ?.. can norfloxacin remove my dermatographia or not ?” please answer my question, because your answer is very very interesting for me. I’d be glad if you will help me 🙂 thank you
Ariana
on May 5, 2017 at 5:44 pmHi Bill!
There is no cure for dermatographia, but with a good diet and healthy exercise I’ve managed to ease the itch quite a bit. Some people choose to take antihistamines to help the itch, but I’ve found that I don’t need them. Everyone is different!
Did you see this post I wrote about it? http://skintome.arianapagerussell.com/how-i-almost-cured-my-dermatographia-the-all-natural-way/
Pai Gnom
on April 10, 2017 at 8:13 pmI had this skin writing thing for five years and never found it very uncomfortable but perhaps it was mild. I had to scratch (lightly scratch) the skin to get the raised “hive” and it wasn’t very red or itchy just raised. I couldnt get that reaction from just someone grabbing my arm unless it was very tight. I was in grade six so we played with it a lot, wrote notes and freaked out people writing help in my stomach.
Anyway I am in no way condoning this treatment as its not fun, but just food for thought by skin writing went away completely when I was diagnosed with cancer and had my first chemo treatment. Perhaps it was the suppression of my immune system, perhaps it was something else. I had this treatment eleven years ago and have still not able to write in my skin. Of course my immune system is still compromised and will be for the set of my life so maybe that is the reason. Personally I would live with the dermatographia before I compromised my immune system again, but it makes me think that it is linked to immunity.
Ariana
on May 5, 2017 at 5:50 pmWow thank you for sharing! I’m sorry to hear about your cancer experience, but glad to hear you’re doing well now.
Sounds like you had a mild case of dermatographia so thankfully you didn’t have the crazy itch like some people. That’s how mine is too.
That’s an interesting connection you’ve made between chemo, immunity and dermatographia. But like you said, I definitely don’t recommend anyone compromise their immune system though! As I wrote about in my recent post ( http://skintome.arianapagerussell.com/how-i-almost-cured-my-dermatographia-the-all-natural-way/ ), I do think the more we can calm inflammation and get rid of toxicity in our bodies, the more our skin can calm down. It’s likely due to less stress on the system, including the immune system being over stimulated.
Maria
on May 5, 2017 at 3:24 pmI’ve been having a really hard time accepting the fact that i could have skin writing. About 10 days ago on a monday, I was going though a very emotional moment and decided to get a hot bath. The moment I came out and dried up, my whole body began to itch. I went to bed and felt a mild discomfort but didnt give it much though. The next day I remember scratching my back non stop and thinking that maybe my shower gel o soap had given me allergies. And continued with my normal life (at this stage, I only had itching and felt little bumps on my back that I also came to think were mosquitoe bites that were itching). By the time it was saturday that week, my itching had become worse and whenever I accidentaly scratched or had a light contact with any object, the itching would begin and a red spot would appear. At this moment I started thinking maybe it was an allergy so I went to farmacy and bought Loratadine. (I forgot to mention that to that point I stopped drinking anything that I had previously never had before, like the fact i had began drinking ACV for two months prior, everyday in the morning and a week earlier I had began a detox treatment with active carbon and it was just a couple days after I finished my detox, that this whole thing started.)
By the next week (Monday again) i tried drinking matcha tea since i read it could help but only drank it for two more days since every single day my condition seemed to get worse and the Loradatine did NOTHING for me. I stopped drinking everything and just drank water. I lost my appetite thinking I dont even know what food is causing this allergy. And by that time my symptoms where extreme swelling and itching by any contact, even just moving, my clothes would cause it. Until that moment, I decided to go and have some tests done. I scheduled an appointment with a dermatologist.
I got my test results yesterday (today its been one week and four days since it all began) and everything seems normal. I had an allergy test done and it said I had nothing. the only thing that was above normal were my eosinophils and in the lab they told me that could be an indication of some kind of allergy. I have my appointment today but throught this horrible week i have been obsessing on the internet and I think I might have Dermatographism.
It has only been a couple of days but this is terrible for me, it has been horrible. I have read several times that it is a condition that does not affect your daily life, but it has affected mine a big deal and I cannot even imagine having this for the rest of my life.
I am hoping I can correct this, since I started drinking the ACV beacouse I started having problems with my digestion. I stopped going to the bathroom sometimes for an entire week and I read that ACV could help. It did not but I continued drinking it for two months beacuse it did give me energy, until I stopped beacuse i developed this skin writing thing. That is also the reason I decided to detox my body. I am afraid I did too much to my body by drinking the ACV and having a detox with active carbon. I am hoping my problem resides on this so that it can be corrected and the dermatographism can go away too.
I am nervouse and have been praying every day to be strong enought to deal with this cause I dont know what it might mean for me to have this for ever. I cant stand it.
I will keep you posted after my appointment today.
Maria
on May 5, 2017 at 3:29 pmWish me luck!!
Also, I am 30 and guatemalan. 🙂 so sorry for my bad ortography
Ariana
on May 5, 2017 at 5:57 pmHi Maria,
I’m so sorry to hear about your discomfort! I do think you’ve been doing good for your body to detox and drink the ACV. It might just be a hump that you’re crossing on the path to health, and the dermatographia probably would’ve shown up sooner or later anyway, regardless. So don’t blame yourself! Did you see my recent post about how I’ve been healing my skin?
http://skintome.arianapagerussell.com/how-i-almost-cured-my-dermatographia-the-all-natural-way/
Maybe some of the things that worked for me will work for you.
Also, you were wise to try some new things if you weren’t going to the bathroom for a whole week! That could’ve been the tipping point…. a build-up of toxicity due to irregular elimination. It could’ve just been a coincidence that the dermatograhia started when you began drinking ACV.
Let us know what you discover and again, please don’t blame yourself! This is just a minor bump in the road and you’ll figure it out ;+)
Maria
on May 9, 2017 at 10:12 amHi, Ariana!
Thank you for your reply. I went to the dermatologist and she did diagnose me with skin wrinting. I have been taking antihestamines (3 different kind of pills) for a couple of days now and I feel much better. She told me that I would continue taking them for 6 weeks total and on day 20 she will see me again to see how I have progressed and to see what pill she can take me off. If the skin wrinting subsides, luckyly then it wont come back. She told me it might have been al allergic reaction to a pill. I hadn´t realize but when she started making questions, I realized that I had begun drinking a pill for migrane a couple of months ago that I had never ever taken before. So she belives that I will be ok after the 6 week treatment and I am having all the hope I can that she is right. Also, I have a strict diet to comply with for these 6 weeks
Jsw890
on May 19, 2017 at 11:18 amForgive me if this info was already stated, but does anyone know what antibiotic it was the Skinwriter Anonymous was on for the UTI?
Stacey
on July 9, 2017 at 6:36 pmMy son (almost 2) gets routine ear infections. The Dr puts him on amoxicillin. I swear he’s allergic to it, but the Dr isn’t buying into it. The last couple of times he’s finished his dose, he broke out in mysterious rash for a couple of days.
This time around, the rash came earlier, and it’s much worse. He’s been done with the needs for a week and it’s still sticking around. When he wrestles with his dad or sisters, he has prints on his skin like scratches or thumb print. He swells up so easily. I’ve never heard of dermatographia, but this is all making a lot of sense.
Ariana
on July 14, 2017 at 10:42 amOh my goodness that is so scary! Can you get your doctor to prescribe an alternative antibiotic? When I took penicillin as a child I broke out into a rash and haven’t even tried taking it (or amoxicillin) again. I do still have dermatographia of course, but I’m not sure if that’s what caused it because it didn’t show up until I was a teenager.
I wonder if maybe he has some kind of mild food allergy that cause the ear infections? Or something else going in? I’d encourage you to treat the root of the problem and try to figure out what’s causing the infection in the first place. It’d be great to avoid medication!
Best of luck and please let us know how it goes!
Dani
on August 13, 2017 at 8:59 pmThanks for sharing!! I just finished a course of antibiotics only to find myself itching and causing streaks of welts all over my body. So it seems that possibly my antibiotics have caused some dermatographia. Have begun probiotic treatment that will hopefully help. I have also noticed it gets worse after eating something high in sugar!!! Must be gut related for sure.
Mary
on October 29, 2017 at 7:28 pmIn 2007, I had a major toothache for 2 weeks or so. It didn’t get any better. I finally went to dentist. They had to extract my tooth and found a severe infection in infected tooth. They gave me penicillin to take for 10 days. I finished the course and 2 weeks later I noticed hives on my skin. When I’d scratch, my skin would welp. I avoided scratching until 9 years ago (yes 9 yrs) it got worse. Anything and everything irritated me, even hot showers. Clothes, tags, etc. I went to allergist and was prescribed zyrtec, Zantac and hydroxyzine. Zantac has a histamine blocker in it. I took them faithfully for 6 years when I dropped Zantac. I heard excessive use can hurt liver. I’m fine with Zyrtec and hydroxyzine. I honestly believe that penicillin was the cause for chronic urticaria/dermatographia.
I wish there was a permanent cure.
Krista Pyle
on October 30, 2017 at 6:00 pmI had the same thing after taking amoxicillan. Itching, hives, and dermatgraphia. It was so bad, itching and scratching all the time! The dermatologist had me taking a variety of antihistamines that I was on for two years. I started taking a Probiotic that I got from walmart, and after a month or so I noticed less and less itching. It’s practically gone now. I couldn’t tell you for sure that it is the Probiotic that has helped, but it may be worth a try.
Mary
on October 30, 2017 at 6:51 pmThank you Krista! After hearing other people share their stories, I’m not alone in this. I’ll try the probiotics and see what it does.
Cherry
on November 28, 2017 at 9:48 amI was just reading an article yesterday about how priobiotics are great for curing acne & so forth and planning to buy some today! I too am a dermatographia sufferer since 2013. I stumbled on this post to hear about the links between antibiotics & dermatographia. I don’t care what anybody else says different about it cause I now see the link! My story is this… In 2013 I decided to try Niacin supplements for whatever health reason I had googled. They made me flush so extreme that I had to go to the E.R. where I received a shot, antibiotics & steroids. It calmed the flushing down, but days later I noticed an itch that would whelp like I’ve never seen before. Thanks to Google I was able to determine that I had dermatographia (skin writing). I read the story of the lady who made art pictures with her condition ( I’m sure all of you have read it as well.) The killer part was only 2% in population had this condition at the time. That was simply a mind blower! … but I’m now reading that others developed it after taking either steroids or antibiotics, so yes there’s a link. I guess we can only pray that we find ways to manage this skin disorder & hope that it goes away. Everyone will have their idea of it, but I know I was perfectly fine until I went to the E.R. for that allergic reaction. Of course I thought it was the Niacin at one point, that is until no other link to Niacin was established, however the link to steroids & antibiotics has prevailed, which is why I no longer trust medications. They cure you in one way while stirring up a whole new can of worms. The best thing we can do is work on our health. Best wishes to us all.
Ariana
on January 22, 2018 at 1:16 pmThanks for the note Cherry! I hope you’re feeling better. Probiotics have definitely helped me :=)
Taneisha Cleveland
on December 20, 2017 at 2:46 pmI have had dermatographia since roughly July 2017, the only correlation I can come up with that may have been the cause is getting the series (3) hep vaccines. The first few months was extremely rough until I self diagnosed myself with it and than my doctor did also. She prescribed zyrtec and famotidine, which help immensely, until yesterday. Yesterday I went to the dentist and was prescribed amoxicillin for a tooth infection. Within a few hours of taking the first dose of antibiotics I started itching uncontrollably. I literally itch every where.
Ariana
on January 22, 2018 at 1:11 pmOh no! I’m sorry to hear that. I hope your itchiness gets better! Did you see my latest post about healing dermatographia naturally?
Gregory Louie
on January 10, 2018 at 9:38 amDear Ariana,
Thank you so much for starting this discussion. I have had dermatographia for so long now, I can’t remember when it started.
It’s been at least over 10 years. I do suspect the gut microbiome is involved. In my case, flare-ups are seasonal, when the air is dry in the winter, I am much more sensitive. I have also noticed that my symptoms seem to be worse whenever I ingest more sugar (like during the holidays). I have just started to familiarizing myself with a small fraction of the scientific literature, but my the most sensible model that is forming in my head is that changes in diet result in changes in gut microbiome composition and diversity. The gut contains both pro- and anti-inflammatory species, so it is likely the reason so many experience symptoms after antibiotics is that it disturbs the microbiome. Besides, antihistamines there are a wide variety of anti-inflammatory supplements that work on different pathways that folks might try… for example, fish oils, resveratrol, tumeric to name a few. As far as diet is concerned, fiber and diversity in diet leads to diversity of the microbiome, so getting plenty of vegetables of different types are likely to help. That’s a theory of course. The proof is in the pudding, so I’d love to continue to read stories of how other people are succeeding to manage their experience.
Ariana
on January 22, 2018 at 1:02 pmThanks for the note Gregory! Yes, I believe healing the gut can help dermatographia. Have you seen my recent post about the steps I’ve taken to detoxify and heal my system?
Mariana
on February 15, 2018 at 4:47 amHello from Romania. My child has a similar affection, res lines like scratches appear on her skin, and come and go in several minutes. They are itchy but not very itchy, and her skin is kind of dry (which she never experienced before)Also I noticed small dark bruises appeared on her legs (the part below knees of the leg), and go.
We had an infection with Campylobacter jejuni about a month ago. The doctor prescribed us Azithromycin, a macrolide antibiotics. Last day of the treatment, both me and her, had red itchy skin on our back of our hands. Then the skin on the hands dried very much, and cracked, like being cut with a razor, and bled. We tried to treat us with aloe vera gel from the aloe we have, and it worked in some manner, but did not fixed it all. Now we are using Oregano oil fro two days, and I see some improvements.
Apart from this, even if at the end of our treatment the results, double checked, were we are clear of Campylobacter, my girl developed a rash on her torso, and begun to have red scratch like rash that appears and goes, and those small bruises.
She also feels some rash in her eyes and around the nose, and something foreign in the eyes from time to time. Also pain that comes and goes in muscles and joints. We had IG E and resulted ok. The infectionist gave us to make blood markers for joint inflammation, and results were within range of normal.
Before the antibiotics, we took blood test, and it was ok, except for monocytes which showed the infection.
Now, after the treatment, and with all these weird symptoms, we made another round of blood tests. Lymphocytes are raised and VTM, which weren’t before. We also expect the results from the test of Lymphocyte transformation to Azithromycin. We went to ophthalmologist, and her eyes are ok, was tested and looked into.
Are these crazy symptoms results of Azithromycin? What can I do? Doctors seem to be …a little lost nowadays. For the itching of the eyes and nose and red spots/ scratches I begun to give her Cod Liver Oil, Vitamin C, and Aller Care, made from elderberry and grapes. I give her bio yoghurt with live bacteria LA and BB. No processed food, only prepared in house, and fruits.
Gregory Louie
on May 25, 2018 at 9:48 pmHi all… I have had dermatographia many years. I take Zyrtec, which relieves some of the symptoms, but not all.
I am also a scientist and am fascinated by the recent literature on the gut microbiome. Here are my perspectives from what I’ve read.
Each of us have a different gut microbiome. The various populations of species in our gut vary dramatically within a few hours in response to whatever we feed it. These microbes consists of many different species of not only bacteria but also fungi (yeast) and don’t get freaked, probably some protists and worms. Ingesting sugar are simple carbohydrates are probably dhifting the balance towards yeast.
Everything that lives in the gut has evolved to survive in the human gut. For example, yeast send out signals that are recognized by the nervous system. I believe those chemical signals are often responsible for the desire to ingest more sugar. Whatever is true, the critical experiment was in germ-free young mice, fecal implants from obese mice lead to obese mice, whereas fecal implants from normal mice lead to normal mice even when fed the same diet.
In other studies, certain species of gut bacteria are known to produce signals that deactivate natural killer cells of the immune system. It is likely that the some species are involved in the hypersensitivity of mast cells in the skin.
So my guess is that the majority of people who took antibiotics and were left with dermatographia need to take probiotics to restore a healthy gut microbiome and watch their diets carefully.
The few people who were helped by antibiotics, we’re probably helped because it got rid of species of the bacteria that were causing the damage.
Most often, then natural gut microbiome that comes from a healthy organic diet is the gut microbiome that you want. However using an antibiotic to wipe out bad bacteria can also be very helpful.
I know that I get flare-ups when I eat junk food. I also know that the athlete foot fungus that live on my skin flare up when I eat sugar. So I usually avoid sugar. My guess is that other food substances reach the skin as well. The gut is not the only place in the human that has a microbiome. The skin has a rich microbiome as well.
I’m imagining that it’s why dry brushing and coconut oil on the skin is helpful.
There are some creams that contain ceramides. These are lipid molecules that strengthens the skin barrier. I am going to try those next. Strengthening the Skin Barrier probably prevents the immune cells patrolling are skin from encountering the bacteria that lives on our skin. Anything that breaks down that skin barrier, like scratching, activates the immune system because they are probably seeing the bacteria that normally live on the outer surface our skin.
sariah
on July 2, 2018 at 3:55 pmDoes anyone’s symptoms go away for awhile?my skin would flare up from any slight scratch for four months ,and now two months later it barely appears
Ali
on November 12, 2018 at 5:23 amHi gregory louie, you had posted your experience since 6 months, is any improvement with research….
Ali
on November 12, 2018 at 5:26 amHi gregory louie, you had posted your experience since 6 months, is any improvement with research…. please be know I’m also suffering with this.
Danette
on July 10, 2018 at 10:01 pmVery interesting article. I have long suspected that I had an allergic reaction to sample medicine I was given when I was 9 yrs old as the cause of how I contracted dermatographia. I have had it now for 45 yrs, and I have only had a name attached to it for maybe the last 25 yrs. I have never taken medicine for my condition, and I have never had a problem with people noticing the swelling unless it was on my face. I try not to scratch any itch but rather rub it, because we all know what happens after first contact. What’s interesting to me, is that I actually passed this on to my son, he has had it since birth. He is now 30 years old, has a newborn so I will be interested to see if his son has also acquired it.
viahal
on July 19, 2018 at 12:08 pmI have dermatographia allergy problem having rashes, etching from last 2 years. I am taking solitair (levocetirizine and montelukast) tablet after every alternate day from last 2 years, is it harm ful or has any side effects? After taking allegra for six month i had acidity problem but now i don’t have acidity only big problem is of dermatographia. If it is so then please help me with some homeopathy medicine which help me with my skin itching (with red lines and spots) problems along with this I also have constipation problem from last 5 years. Recently I had a diagnose with hypothyroidism is it right? My TSH 15.96 microIU/mL and T3 – 98.79 ng/dL and T4 – 6.48 micro. G/dL and doctors advice me to take thyronorm 100 mcg. All these problems are associated with thyroid? If so then please help me and give your valuable suggestions.
Jessie
on July 22, 2018 at 12:27 pmDo I have a story to tell! In 2015 when my daughter was nine years old she started having migrating joint pain, stomachaches, headaches, etc. We had her tested and her antinuclear antibodies were elevated, suggesting an autoimmune disease except she had no markers for a specific autoimmune disease.
A couple months into that she got strep throat and she was treated with amoxicillin. Eight days in she started with an itchy red rash behind her ears and on the back of her neck which later turned into hives and started showing up all over her body. Her joint pain and swelling got so bad that she had to be hospitalized and she also started to have neuropsychiatric symptoms. Soon after that we noticed that she had dermatographia. She left the hospital with doctors not knowing what was wrong but they told us it should be self-limiting and we could go on our way. (They agreed her skin issues were not an allergic reaction but they weren’t quite sure what it was). Anyhow, she ended up being misdiagnosed with lupus and put on immunosuppressants for 9 weeks. I think this helped to decrease the dermatographia.
So she was still having a lot of pain to the point where she could not walk for days at a time and she was still having her neuropsychiatric symptoms so she was hospitalized again but this time they misdiagnosed her with a psychological disorder called somatoform disorder. After a couple of months of trying to ignore her symptoms as the doctors directed I had had enough. They wanted to put her on Zoloft but I just felt that there was something internal going on that we needed to get to the bottom of before going that route. Ultimately I took matters into my own hands and found a specialist. She was diagnosed with PANDAS, Lyme disease, 4 co-infections, plus a couple of other active infections. She had a bacterial imbalance in her gut and indicators of an upregulated immune response. It took us over a year to get to that point of correct diagnoses. She has been in treatment for all of this on a well rounded-regimen with both natural and pharmaceutical remedies for almost 2 years now. Every single one of her symptoms is better and I thought the dermatographia was gone but it pops it head up every once in a while usually on her back and I think it might have to do with being around some sort of allergen but I just don’t know what it is. She does seem to have all around more sensitivity to allergens that were probably very mild and we didn’t realize she even had until she became sick and her immune system went crazy. We did find out that she has moderate allergies to certain grasses, cats, dust mites, and common mold. I have been suspicious of a possible mast cell problem but that is not confirmed. Anyhow, she is doing much better but I find this topic so interesting. And I think that her experience might tell us that underlying infections, antibiotics, and an overactive immune system may all contribute to dermatographia. An interesting point is that her reaction to the antibiotics in my eyes was what is called a Herxheimer reaction. That is when there is die off of the bacteria and it releases endotoxins that can’t be detoxed as fast as they’re being released into the bloodstream so it causes massive inflammation. If anybody is interested in seeing her story with pictures I have a blog at http://www.jessiebweb.wordpress.com
Thanks for letting me share my long story!
Jimbs
on November 3, 2018 at 8:43 pmSame thing happen to me like others. I had tonsillectomy operation and taken antibiotics for a month but nothing happen. After a month, I had cough and I take antibiotic for 7 days (twice a day). The infection was gone but after that I notice that I’m having like insect bite, afterwards it get worse. When i scratch my skin, it will turn to red and after 3-5 minutes it will turn to hives. I’m having this condition for 2 weeks now, and I really don’t have idea how to deal with this but after seeing this website this gives me hope that I’m not the only person who had this condition after taking antibiotics.
In addition, I am allergy to Amoxiclab. It’s also strange that most of their comments who had Dermatographia had a bladder infection because I have Gall Stone as well (Gall Bladder Polyps).
Can you please help me or give more ideas how to deal with this condition and how to prevent my self for scratching myself so the hives will not occur again.
Big Credit to Miss Ariana for creating this website! THIS IS A VERY BIG HELP FOR ME WHO’S NEW TO DERMATOGRAPHIA 🙂
Jessie
on November 3, 2018 at 8:50 pmWe use lavender essential oils on my daughter’s hives and she says it helps a lot.
Cay
on March 2, 2019 at 11:57 amHi! How are you faring with Dermographism? I took amoxicillin a month ago for a uti, and developed Dermatographism after completing the antibiotics. It’s been a month since I developed it.
What I am trying :
Clean up your diet as best you can. Suppler with vit c, vit d at the very least l. And most important probiotics. I believe our Dermatographism is due to a haywire I mine system that originates due to a gut Bacteria imbalance
As well if you have not already , go to your primary doctor and have blood work done. Basic tests for autoimmune markers and what ever else they may suggest. In case it is due to an underlying condition.
As well, try to stop obsessing about it. Hard to do but trust me it is needed. I have developed insomnia and deep depression due to this. But this past week my perspective has changed a lot. Get busy with the things you used to do and love. Take care of your physical body. Trust that your body will right this. 🙂
Wishing you speedy healing
Hussein
on December 24, 2018 at 2:23 amHi all, iver just recently been diagnosed with dermatographia. For me it came out the blue. I had no stress no antibiotics nothing new in my lifestyle or diet. It just suddenly came on all of sudden. One day i just noticed a welt across my neck and thought id got bitten. Then the same night i started gettinf hives rash all over my back neck chest then few days later my arms legs etc… drs first thought it was a case of normal hives but the antihistamines didnt work at all or lessen it. Then i went back to drs and he prescribed prednisolone 30mg a day for 7 days. I startes taking that with antihistamines and that really lessened my symptoms. Throughout this period reading it on net i realised i had dermotagraphia as i was able to draw on my skin and write. I went back to drs and he booked me appointment with dermotologist. Now throughout this period i noticed my hives would spread and places i never use to get it i started getting it like on palm of my hands or face. Ive constantly kept going back to see wot could av caused this.
The only things after reading i can see is i had a vit d deficiency before all this started. I started taking vit d pills and ive read they can cause rash. But ive stopped taking them and my hives still come but less so im not sure if thats linked as i was on high dosage of 80,000iu a week then doen to normal 100% recommeneded daily allowance. But i think all fatty deposits in my body from vit d could av caused this but then im also thinking wat if it was a vit d deficiency that ccausdd this. Also i notice when my symptoms got worse i started frequently going toilet like 20+ more a day. I thiught maybe its a bladder infection. Another thingn which strikes me is ive been allergic to peniccilin since a baby so maybe theres a connection between a body thats allergic to antibiotics and this condition. Although during leriod of getting dermotagraphia i did not take any antibiotics. Its been over year since last tome i had antibiotics so i doubt it thats.
So yeah possibly its just people whose body is allergic to antibiotics who later get it in life
Or could be down to infection in gut or gut imbalanaces
Stan
on October 22, 2019 at 4:11 pmGreetings everyone, am so happy seeing this writeup even if its years back now, I really want to know if anyone or any cure to dermatographia has been found… My case started few months back when my roommate came back from his trip with itches and swearlings in his p private parts, we went to a doctor and was giving some tabs and injection, few days later I noticed I started itching and after several meetings with drs, we where both diagnosed to having scabies, now his scabies gone and I was left with the itching but in a different way, I have the writing long marks and all the symptoms of dermatographia, no one seems to know the cure and most people don’t even know what it is, I think I got this from several treatment used to treating scabies, from pyritone lotion, benzene benzoate, sulphur cream, ivermetin tabs, and different antibiotics used during the period. While writing this I discovered I also took antibiotics. And cone to think of it, that my be the curse of my dermatographia. I try hard to stay away from medicine, here with me is prednisolone and some other medicine, am just looking at them. Don’t want to make things worst for me. This is already too much for me, I can’t sleep and I can’t concentrate well, all that borders me is how to get rid of this dermatographia, at times I be thinking maybe this is a payment for sins committed then I saw a comment here and someone said he had it since he was a kid and I had to rethink. In general this is not a cool way to live. If anyone find a solution to dermatographia please and please update me (us)
Ariana
on November 3, 2019 at 2:57 pmHi Stan! I’m sorry to hear about your suffering. No, unfortunately there is no cure. But with diet and lifestyle changes many people (myself included) have found relief from the itchiness. Have you seen my post How I *Almost* Cured My Dermatographia, The All Natural Way? Hopefully some of those suggestions will work for you. Good luck and please let us know how it goes! I hope you feel better!
Ellen
on November 3, 2019 at 6:30 pmThis is my experience leading up to the condition and how I was able to cure it, entirely (after almost a year of no reoccurrence):
1. I had a UTI, and I was prescribed Macrobid.
It wasn’t immediate, but I noticed a few weeks after completing my prescription that symptoms appeared full-force.
I thought that I was bitten by spiders in the night because in the morning there were large circular hives all up my forearms. I took some benedryl during the day and then took an oatmeal bath that evening but over the next couple weeks it only got worse — it was all over my body this time, and was full-fledged dermatographia: I couldn’t wear my watch anymore, any turtleneck sweater I put on over my face would make it swell, I was waking up in the middle of the night, itching to the point of bruising and bleeding… (I’ll spare you further details as you all know how bad it can get).
At the time, I still thought it was an allergy so I was doping myself with anti-histamines on the daily and I bought special oatmeal soap bars and lotions and bath soaks, none of which cured the issue (but soothed my skin).
2. Anyways, when I noticed symptoms were not clearing up, I went to two different doctors in the span of a month, both of which told me there was “no way” the antibiotic caused this reaction, simply because symptoms wouldn’t last this long if it were an allergic reaction to a pill I wasn’t taking anymore. And I agree, this reasoning make sense, only I wasn’t convinced it was an allergic reaction. The doctors said it was either allergies or some kind of hormonal imbalance, and they sent me to specialty doctors that both had several-month waiting lists.
3. A few more months pass and I’m convinced it’s the Macrobid — I was researching the condition and came upon this website, and it’s great there is such a community around this because hearing about real-life experiences makes your worries/suspicions valid in the way that doctors don’t.
>CURE:
Anyways, I was visiting a friend around the holidays whose roommate is a Naturopath.
Also: ** this post isn’t meant to welcome personal opinions on whether you agree or disagree with the practices of naturopaths but rather, my personal experience **
I was explaining the condition to my friend and his roommate and immediately he asked me “Are you waking up in the middle of the night, itching?” To which I reply Yes…; “And, before you had this condition did you take any antibiotics?” … YES … and then he says: “You have parasites.”
I immediately wanted to cry because usually having parasites means you’re dying. Only, he explained to me that when you take antibiotics, they don’t just eliminate the bad culture, but it also eats away at the good culture, making your body susceptible to… parasites? I want to speak with authority on the subject, but the truth is, I’m not the naturopath, he is, and his reasoning seemed as good as any. I was desperate to try anything.
I was a student at the time and wasn’t eating properly, not looking after my diet the way I should have, and this specific type of skin parasite feeds exclusively off sugar — not just added sugar, either, but sugar in breads, fruit, yogurt, pasta… etc.
He told me to cut out ALL sugar for 3 weeks to a month, and take a daily probiotic with my breakfast (the thing is, because there is sugar in yogurt, you shouldn’t replace that as a probiotic substitute, you need to cut out sugar completely for a short span of time).
Believe me, this was difficult. I felt starved but, it’s a fast that is entirely worth it — I noticed an almost immediate difference, and within a week the condition was mostly cleared up (but, stick with it for the 3-4 weeks).
This was in January, and I have since taken antibiotics for the same type of infection, and I always watched what I ate while on these antibiotics, and I haven’t had a reoccurring instance of dermatographia.
I am very lucky because I only suffered for about 4 months before I was able to find my solution, though I know this probably won’t work for everyone. Luckily, it worked for me. And to this day I feel like if I hadn’t been at the right place at the right time, meeting a friend-of-a-friend who HAPPENED to be a naturopath, I would still be suffering. In my experience, doctors were useless and misinformed.
Please try this and tell me how it goes, I want to know who else this works for and maybe who it didn’t work for, but I hope it works for at least one of you.
Jessie
on November 3, 2019 at 6:57 pmMy daughter got it at age 9 and she still has it at age 13. She had a series of health problems (undiagnosed Lyme disease with multiple co-infections) then strep for which she took amoxicillin and that heightened all of her symptoms and caused dermatographia. She also was diagnosed with an autoimmune brain disease called PANDAS. While she is doing much better after a highly customized and complicated treatment regimen, she still has the dermatographia and she tends to have exaggerated responses to certain allergens. With that said, I am trying to rule out mast cell activation syndrome, which might be something you would want to research to see if it fits any of your symptoms. I think some of the best treatments for the dermatographia would be a low histamine diet, and H1 and H2 blockers. There is also a drug called ketotifen but I believe you have to get it from a compounding pharmacy. We are still trying to figure things out for my daughter so she is still having issues with dermatographia and itchiness, hives, etc. but I think, for her, avoiding her allergens, taking loratidine (Claritin) and some other herbal supplements and probiotics will hopefully help. Hopefully you can research some of the things I mentioned and find a solution or at least a little bit of relief – best wishes!
Alex
on December 6, 2019 at 6:56 amAnother vote here in this very long thread for a connection between dermatographia and antibiotics. In my case, antibiotics are always connected with a worsening of the condition.
I’ve had dermatographia my entire life (currently in my early 40s), though truth be told I didn’t know it was a condition or even abnormal until very recently when I was “diagnosed” with it. The diagnosis came while visiting the doctor to address an outbreak of extreme itching, most pronounced at night, that had lasted for over two months (and was getting progressively worse).
I was diagnosed with dermatographia almost as an aside, without the doctor necessarily drawing a connection between the bout of itching. The diagnosis was made after he touched my skin while doing my exam. Honestly, my entire life I’ve just thought that it was how skin behaved… I certainly see now that it’s not how it’s supposed to work!
I tried every OTC method to relieve my itching prior to going to the doctor. He prescribed me hydroxyzine, and although I’d already tried multiple OTC first generation antihistamines, he felt confident that hydroxyzine in particular would address the itching better. Relief was found about a week in, with almost full resolution of itching about three weeks into daily dosing.
Though I consistently have dermatographia symptoms, all of the times that I’ve had actual life-disrupting problems with my skin (recently the itching, in the past pain sensitivity in various patches of skin, and more pronounced dermatographia), it’s always followed a course of antibiotics. The itching came about a week after I finished a round of penicillin for a dental procedure. A few years prior, I had skin troubles after a double round of ciprofloxacin for a persistent ear infection. I don’t have an “allergy” per se to any of the antibiotics.
I never made a connection until the itching, when I sat and actually documented the variables and circumstances surrounding each of my skin-related doctor visits over the years. I can’t say for certain that there’s causation, but there’s absolutely correlation.
JB
on February 23, 2020 at 8:07 amHave you heard of MCAS? Mast Cell Activation Syndrome? We are suspecting that in my daughter but her symptoms did start after amoxicillin – but she had a range of health problems at the time to include undiagnosed Lyme disease and coinfections plus a strep infection- it was a perfect storm which led to an autoimmune neuropsychiatric d/o called PANDAS. This was all at age 9 and took two misdiagnoses Before she was diagnosed almost a year later. She is 13 now and one of the main remnants of all of her issues is dermatographia but she’s also highly sensitive to allergens, which was never the case before her health problems started. She can just walk through the store and rashes and hives will form in different parts of her body. The reason I mention MCAS is because itching is also part of the symptoms.
Marcela Muro
on February 22, 2020 at 5:53 pmI am going through my second episode. I had one back in 2018. Recently i had a UTI and took macrobid. A week later I have bad hives. I was told to stop taking macrobid and since then I’ve been taking prednisone, Allegra, and hydroxizine, but not my skin is sensitive to the touch and turns bright red. This is really depressing. I feel I need to cut something out but not sure what? What could be causing the redness to the touch? Please help. My days are ok (for the most part) with Allegra but it’s when i go to bed that it gets worse.
JB
on February 23, 2020 at 8:11 amHave you tried a low histamine diet? Also research MCAS. Mast Cell Activation Syndrome. One of the things my daughter’s functional med specialist recommends is HistDAO and quercetin. We or just starting out with those so not sure if they are effective or not. Maybe something to look into?
Crystal
on July 9, 2020 at 6:33 pmDermatographia
I have taken control of my condition and let me tell you diet is everything! I tried allergy medicine and nothing worked. Claritin did nothing and now I take a 24 hour Allegra every morning and I can live through this. If I do not have a controlled diet the 24 hour Allegra works for maybe 12 hours, and that’s being generous. It’s difficult to take control and eat healthy but it’s not worth being itchy all the time. I was miserable and kept thinking if I don’t get this under control I won’t make it through this. That was my motivation. I cut out alcohol (the worst part) and only drank my coffee black. I cant go without caffeine. Only food I ate was raw fruits and vegetables and if I ate something cooked it was boiled in water. I could live off of rice,beans,potatoes, and white meat chicken. It’s not forever. I met a girl who also had Dermatographia and she was not from the US. She told me her doctor put her on a strict diet and she gave me really great advice. Hers went away and I still have mine. I was on the strictest diet for 2 months straight and it helped me take control. I still have Dermatographia but not as severe. I won’t give up trying to get rid of it. Mine is pressure related , I don’t get effected by water temperatures. Some other people have certain triggers. Mine was activated at night mostly. Going out to eat was impossible because pretty much no one makes fresh food anymore. I did not eat ANYTHING processed. I made everything myself, took time for myself and to prepare my meals. I think the worst things I can eat are red meats and anything greasy like fast foods. Those are the 2 biggest things to stay away from. Once you realize every social gathering is about food and your options for socializing are limited it’s kinda frustrating. My family always wanted me to eat but I didn’t want to eat at restaurants. I didn’t want to be that picky person asking if their food was fresh or if they could steam my food instead of cooking it. It was such a chore to order food. But once I starting seeing results it made this decisions easier for me. I would get steamed veggies when we went out with steamed rice and never go to places that don’t have fresh food. I took up yoga to help me balance my mind as well. There are free videos on YouTube and a girl that does a 30 day yoga for beginners. Take time for yourself if you want to get better. It’s possible and you can live a a better life. Don’t give up Also I tried antibiotics (azithromax) and it only made me more itchy. I’m taking liver support pills daily and those help a lot.
Ariana
on July 12, 2020 at 7:53 pmThanks Crystal! I love hearing about how you’ve helped your skin! Yay for figuring out what works–it’s hard to give up these things but it’s worth it if you feel better :+)
So glad you’re doing well!
hej
on August 12, 2020 at 7:49 pmhello,,, i had an endometriosis scraping, biopsy, and polyp removal. i was awake, on laughing gas, it was painful, and scary,,, i was tense throughout the procedure, probably making it harder to navigate the tools through my vagina…. sheesh!
anyhow,,, i was bleeding afterwards for 3 weeks, and contracted BV, and a notorious yeast infection. i also started getting very itchy in spots, with bumps etc,,, realized it was dermatographia….it has been 3 1/2 months, of infection, and 2 rounds of antibiotics for BV, and 1 antibiotic for yeast infec. and 2 rounds of injecting yeast cream. finished all the drugs…. i have just been diagnosed, infection free, yesterday…. i have also stopped itching as of yesterday….
it seems plain as day, that infection down below was the cause of my derm experience,,, it could also be complete stress, as i was very stressed out!!! till yesterday…
i went to 3 different drs during that period, all referred by one another, and none of them heard of dermatographia,,, and all seemed to laugh, at my findings… i felt like i was in the twilite zone!
p.s. i also was already eating pretty much real, organic meats, veggies, fruits, dairy, nuts, legumes, alot of antioxidants, gluten, small amounts of sugar, and some probiotic tabs…. so it seems it was all about infections, as the culprit
NatureHacker
on August 12, 2020 at 8:34 pmIf itching comes back I would reccomend Garlic powder. Typically bacteria that garlic kills cause itching
naturehacker
on August 12, 2020 at 8:35 pmAnd I mean take the garlic powder internally as capsules, just take them orally like any other supplement.
HEJ
on August 12, 2020 at 10:02 pmhello, i wanted to add to my previous post, above which was about an hour ago. i started having the derm symptoms before i started taking antibiotics. so it seems it is not the antibiotics causing the derm.
hej
on August 13, 2020 at 6:27 pmhello again,,, i wanted to say, i have been taking a low dose of vitamin d, along with magnesium glycinate for years, even though i live in l.a. ca. i try to stay out of the sun….
did not know vitamin d was an antibiotic!
naturehacker ; thanks for your sensible write up,,,, it sure helps to make a lot of sense out of all this…
Alex O
on September 9, 2020 at 4:58 pmHey everyone, 19M have had Dermatogrpahia for probably about 7-8 years. I dont remember exactly when I started, but my intuition seems to think it was around the time I went on triple antibiotics for Scarlet Fever (strep rash) in middle school.
One thing I wanted to say was recently my dermatographia has gotten worse and is more easily triggered. A couple weeks back a had some GI issues as well as some neurological. I’m wondering if I may just have post inflammation and oxidative stress from a virus or something. Perhaps I had covid.
I was taking equate brand cetrizine for a bit and recently it seemed to especially not work aynmore. Switched back to my old brand name Zrytec, and sure enough, it worked once again, at least for the itching that is. Normally generic vs. brand name should not be an issue, but if off brand cetrizine has not worked for you, I recommend at least trying the brand name Zrytec. Perhaps I was allergic to some of the fillers in the eqaute brand, or perhaps the fillers in Zrytec make a difference.
hej
on September 17, 2020 at 9:55 pmhi again,,, well,, my BV infection came back, and so did the derm, but worse. i had a small cyst for many years. it started to grow into a 1.5cm ball above my ear, since the infection started.
i decided to get it removed, at a good dermatology practice. i mentioned the derm prob, and the dr. very quickly wrote down a list of over the counter drugs… i didn’t believe that it would work, so i just kept asking her if she really thinks this will cure my problem ? and she she said without hesitation, yup!
i went home, and suffered every night, itching more and more…. so decided to give it a try…. and i took it and scratched my arm, and nothing happened!!!! so i am still taking these for 2 weeks…..
zyrtec in the morn,, and prilosec at night. she said, “it sounds weird, but it works” i didn’t think anything, because i didn’t know what these drugs were used for…… so far so good it has been a week.
i wonder what will happen after i stop? i”m kind of scared, but these pills make me sooo tired. but it is so much better than itching.
Liz H
on December 3, 2020 at 7:57 amHi everyone.
I just want to thank you for this site and all your comments. I had a course of Nitrofurantion beginning of October and then 10 days later I started getting really itchy hands and then noticed other places on my body was itching and getting red blotches. When I get out of the shower I look like I’ve been attacked by a tiger. I also noticed any pressure at all on my skin (including clothes) would leave me with itchy sore patches which would last up to half an hour. The doctor says its hives and has prescribed cetirizine twice a day but didn’t really help. I’m currently taking no medication for it because I know that if I don’t scratch and just gently stroke it when absolutely necessary I can put up with it because I know it will only last 30 minutes. Only problem is during the day I’m busy doing stuff so my hands are nearly permanently itchy. It drives me mad but I’m learning to cope. I’m seeing a skin specialist GP on Monday and I’m going to tell her what I think it is and see what she says. I can write my name on my arm so I know I’ve got it. But thank you from the bottom of my heart for making this site and giving me the answer. GP’s don’t know everything and sometimes you have to find an answer yourself.
Ariana
on December 13, 2020 at 3:48 pmYou’re welcome Liz! So nice to hear from you! How did your appointment go? I hope you’re finding some relief.
Liz H
on December 14, 2020 at 4:54 amHi Ariana
My doctor did formally give me a diagnosis of Dermatographia and prescribed me different antihistamines (fexofenadine). I can cope now I know what it is and I haven’t got a horrible disease.
Can I ask if anyone has had stomach problems as well because for the last month I’ve had really painful indigestion which started at the same time as the Dermatographia. I’m wondering if the skin inside our bodies is affected?
What are your thoughts? I am having an ultrasound scan this Thursday so hopefully they’ll find the problem.
Wishing everyone a lovely Christmas.
Liz
BM
on December 15, 2020 at 1:11 pmHello,
I recently started getting hives about two months ago after taking antibiotics for BV. I dealt with the hives as long as I could before going to an Allergist. I discovered that I was allergic to yeast and that I have dermatographia, which I knew already because of Google. LOL! Anyway, I am learning to cope with it. I have only had two bad attacks and it usually happen at night. But I have made changes to my diet and it does help with the symptoms. However, I noticed when I eat sugar, consume gluten, or drink alcohol, my Dermatographia is much worse. Like really bad. The doctor prescribed me Zrytec and Pepcid AC which I just started using my Pepcid and I feel like it is helping tremendously.
I see that some you have had it for years and I am not sure if I can do it that long. My self-confidence has completely went down. And I am tired of trying to explain my diet and this condition to others. I really wish there was a cure for this. It is my prayer on a daily basis.
I will say it does help to have a support group and others who understand what I am going through. I appreciate this page so much.
Crystal
on March 20, 2021 at 9:15 pmBM,
Don’t give up. I’m going on year 3 of having a this condition. Trust me it was hard at first and I said I can’t do this forever. I drank every night for years and my eating habits were awful. When I first read that some people got rid of theirs with antibiotics I had my doctor prescribe me my usual Z pack. It didn’t help , and I think it made it worse. Anyway fast food is the worst for this condition, it’s hard to pick up eating healthy. I talked to a girl who got rid of hers and she inspired me to change my diet and at least try to get rid of this condition. I know it’s curable. I wasn’t able to get rid of mine 100% but I lived off carbs: potatoes,rice, and beans( rinse your rice Before cooking until it’s clear cos of all the arsenic). I think it’s all the chemicals in the foods we eat that makes it so much worse. I didn’t eat anything prepackaged. And if I was too lazy too cook than I wouldn’t eat lol grab easy foods to snack on like fruit. And keep telling yourself “this isn’t forever, this is just until I get better”. I took a muscle relaxer the last 2 nights and it’s the weirdest thing but I haven’t needed my Allegra in 2 days. I forgot to take it before I went to work then I was like “well I’ll just see if it works a second day” and today again no hives. I don’t know what happened but I pray I don’t have them back tomorrow. I’ll let you all know if it helps. I again have no idea how muscle relaxers and dermatographia correlate. If you want to ask me specifics on my diet that I did To get my dermatographia under control feel free! Car.crystal@yahoo.com. I’d really love to talk to more people to see if anyone else has a cure.
Chrissy
on August 12, 2021 at 10:49 pmI had a UTI 3 weeks ago and prescribed myself Macrobid (I am a PA-C). Like a lot of you, I started developing dermatographia, any sort of pressure or brushing against my skin would create raised, itchy welts that would last 5-10 minutes. I am really bummed to see that this condition is chronic… thank you for all the tips and advice that everyone shared. I am going to try incorporating probiotics to see if that would help.
LaLa
on December 23, 2021 at 1:09 pmI am 43 and 5 days ago, I felt itchy on my stomach, then arms, then legs and even my scalp/hands/neck. My normal reaction to scratch, lets long streaks of welts. My initial reaction was similar to this story, where I thought I must have come in contact with something that caused an allergic reaction as I have never had skin issues prior. I washed all my clothes, bedding. I reviewed in my mind what I had been eating (I do not eat meat or dairy but do eat fish now and again). I never had an allergy prior, so I was confused. The only new introduction to my life is the Mederna Booster shot that I had 10 days prior.
I even decided to “fast” with just filtered water for 36 hours to rule out diet issues. NOTHING helped. The itching seemed to increase daily, I called out of work, I wore lose clothes, I stopped exercising b/c I was so uncomfortable. I took Benedryl at night, but even 2 doses didn’t seem to help much other than make me so tired.
I went to the doctor today and he took blood (hoping to get results back in a few days), he also prescribed steriods, which Ive taken day 1 so far with no results yet. My body is so itchy all other and no relief seems in sight. I will update this post, once I get the blood work done.
twin2jlb
on December 23, 2021 at 4:00 pmOn Reddit there is a sub Reddit for dermatographia that seems helpful for people to share ideas. Most recently, there have been a lot of people commenting who developed dermatographia after the Moderna vaccine.
One thing that I mention to everybody is that there is a “newer“ diagnosis called mast cell activation syndrome (MCAS). My daughter has had problems since the age of nine and was just finally diagnosed with MCAS at the age of 15 this year. (for her the triggers were Lyme disease and strep). The main treatment right now for MCAS is taking histamine 1 and histamine 2 blockers. (my daughter takes Xyzal and Pepcid which are both over the counter daily medications that have few Side effects). So my recommendation would be looking into taking those meds and look on the mastocytosis society website for more information (tmsforacure. org). Mastocytosis is a rare genetic disease of the mast cells but their website also talks about MCAS (which is over activation of the mast cells). You might also want to research YouTube webinars presented by Dr. Lawrence Afrin. His Hypothesis is that 17% of people have MCAS (or they are predisposed to it). He even hypothesizes that people who suffer from severe symptoms of Covid likely have MCAS). It’s very interesting.. my daughters specialist said that MCAS is a spectrum (People who have a severely actually have frequent anaphylaxis to unknown triggers). But dermatographia is one of the symptoms. I hope this information is helpful to you!
Ariana
on January 9, 2022 at 1:43 pmThanks for sharing this information. I firmly believe that dermatographia is linked to gut issues and a person’s microbiome, and there’s tremendous skin healing that happens when the gut heals (I’ve experienced this myself). I need to do more research on MCAS and am definitely curious about how it’s linked to gut health as well. It seems everything is linked to gut health in some way because our microbiome is a huge part of us.
LaLa
on December 23, 2021 at 4:11 pm@Twin2JLB Thank you for the additional information. I will look on Reddit and keep looking for causes. I have would love to believe that “something” is causing this and since my diet and health have been good, I’m thinking it has to be something else. @womansnaturalpath in instagram has a few good posts on the relationship b/w estrogen and histamines/mast cells that is also very interesting (only b/c Im 43 and may be in a pre-menopause phase of life). I’ll keep researching b/c I firmly believe that some kind of “inbalance” has to be the reason this would come on so suddenly in life **face palm
Ariana
on January 9, 2022 at 1:27 pmI’m in the process of writing more about this since it’s affected so many people, but I do think it has to do with gut health. The vaccine might have thrown your gut out of wack which in turn is making your skin itch. That’s certainly an imbalance!
I hope you’re finding some relief lately.
Lala
on January 9, 2022 at 1:41 pmThanks Ariana,
I do believe how you eat and fuel your body does help. I’m a health coach and don’t eat meat, dairy or processed foods (works for my body). I keep my sugars natural as well. I have a ginger, turmeric (with some low histamine fruit) shot every morning and get 30-60 minutes of exercise/heat rate increase daily.
I certainly can do better but I firmly believe that I’m on the healthier side of gut health. If there is a connection, I’d love to hear more; look forward to your findings 🙂
LaLa
Anonymous girl
on January 11, 2022 at 6:39 pmHi,
I’m not sure if I have dermatographia or not, but I am seeing my dermatologist next week. My skin gets really itchy sometimes and after I scratch it I either get hives and welts and also lines and slashes that look like writing. I recently got off a medicine (minocycline) for my acne and am wondering if that could of been the cause of it. Any thoughts? I have really bad anxiety and am just curious what is wrong with me
Cay
on January 11, 2022 at 7:29 pmHi Anonymous Girl,
I am sorry that you are facing this right now. I lived with really bad dermatographia for a year and a bit before things improved for me. Following an intensely stressful period in my life and a couple rounds of antibiotics for a UTI, I developed it.
Today, I still have itchiness from time to time. I do get red lines as well. But, I don’t even notice it. It has improved to the point I don’t even notice it nor do I care. I spent so much time in despair and anguish due to this. I did a bunch of things to try and improve. Diet changes, lifestyle changes… In my case, it just got better. Not 100% gone, but eh, don’t care. It took time. It also took me spending my energy on acceptance and taking care of my body rather than hating it for what it was experiencing. Somewhere in all that, things improved.
Not everyone will have the same experience with this. It is totally possible that it clears up, or improves. Definitely seek out medical advice and do what you can to improve your health all around. Take out the bad food as best you can, sleep better, eliminate stressy stuff in your life where you can. And remember- don’t put your life on hold for this. If you need to take prescribed medications for this as it sorts itself out, then don’t be afraid of that. Do what you must and don’t let this steal away your happiness. Keep living your life and find some good distractions for a while as your body calms down. I don’t want to minimize your experience with dermatographia. But I hope in this message there is some comfort for you.
Ariana
on January 23, 2022 at 3:06 pmThis is beautiful Cay! Thank you for your thoughtful response. I totally agree with you, and am so glad to hear your skin is doing better :+)
Ariana
on January 23, 2022 at 3:07 pmHi! How did it go with your dermatologist? I hope you’re feeling better!
Nik
on June 3, 2022 at 1:16 pmHi Everybody I just want to throw this out there! I was diagnosed over 10 years ago with dermatographia after taking an antibiotic like many of you. What did work in the treatment of symptoms was taking HCI tablets aka Zyrtec! DO NOT and I repeat DO NOT take Zyrtec or Zyzal or any other antihistamine that involves HCI. Even though it suppressed the symptoms of hives and itching you have to take it daily and run the chances of developing another condition or withdrawal symptoms if you will, if you do not take the Zyrtec. Now am I not only dealing with the dermatographia but the terrible burning and itching sensation from trying to stop the Zyrtec. There are many blogs involved with Zyrtec and itching withdrawals and I always thought the itching when the Zyrtec was wearing off was bc of the dermatographia but in all reality people have this withdrawal symptom with taking Zyrtec and do not have dermatographia. Zyrtec is a temporary fix which creates further complications in your treatment. I will now be starting the dreaded Zyrtec weaning and four weeks of pain and discomfort to get rid of the Zyrtec symptoms and see if I even have dermatographia anymore. In my blog research I did read of a female who developed dermatographia after getting off of Zyrtec. Good luck everybody!
Ariana
on June 26, 2022 at 4:31 pmOh wow I had no idea! Thanks so much for letting us know. I hope your weaning off Zyrtec is going ok. Hopefully some of the things I’ve (and others) suggested will help with the withdrawals!
Parul nigam
on August 1, 2023 at 2:26 amHey there ! I was searching about dermatographia and found your page, and what a relief it is to find people out there who are going through something so similar to me. Thank you for all the posts and insightss.
Ariana
on February 17, 2024 at 2:38 pmYou’re welcome! And thank YOU :=)