Melissa and I met on Instagram, and have had some nice email exchanges about skin. Turns out Melissa, like many others with dermatographia, thinks her condition is related to medication she was taking for another condition. In her case, it was hypothyroidism. This is pretty interesting because many people have told me they believe their hypothyroidism and dermatographia are linked. I’d like to know more about this link! She’s also curious about giving birth, and if the stress from that event would be problematic for those of us with dermatographia. If anyone has insights into this, please comment below. Thanks!
Here’s what Melissa and I discussed over email:
Ariana Page Russell (APR): How long have you had dermatographia?
Melissa Hayes (MH): I’ve had the skin condition since late 2012.
(APR): Do you remember anything seeming to be the cause of the dermatographia? For instance, some people develop it after taking certain medications.
(MH): It’s funny you ask about the medications because, Yes! I did not have the condition until I started taking Levoxyl for hypothyroidism. I have since stopped taking it because I wanted an official diagnosis from an Endocrinologist. It is my family physician who had the idea to treat me for hypothyroidism, due to other symptoms I was experiencing at the time. My sister was diagnosed with milder symptoms prior to me, and wasn’t prescribed anything. However, both of our numbers, related to the indication of the condition, were both “borderline”. She later on sought care with an Endocrinologist and he stated there wasn’t even a possibility it could be hypothyroidism. This is another reason why I have stopped taking the medication. So, yes, I believe my dermatographia’s onset is related to medication.
(APR): How did you find out you have dermatographia?
(MH): I found out I have dermatographia, noticing little marks here and there, while doing daily activities. Upon documenting the “marks”, due to concern, my physician knew immediately what the skin condition was when I presented my pictures to him.
(APR): What are your symptoms? Are they bothersome?
(MH): My symptoms include itchiness, slight redness, & warmth in the area. The itching, at times, can be bothersome. After workout sessions, I’ve noticed my skin is a bit sensitive. If I stratch my skin during that time, the itchiness escalates to a point where I find it hard to cease from scratching. I literally have to hold myself back from the urge to do so.
(APR): Oh yes, that itch can get so bad sometimes! How do you treat the symptoms? Do you take antihistamines?
(MH): I am currently not treating my symptoms at all. At the time of diagnosis I was notified that an antihistamine such as zyrtec could be taken.
(APR): What types of foods do you eat, and do you have any allergies?
(MH): The only allergies I know of are just the typical seasonal allergies around spring time. I eat healthy most times. I grew up eating full course meals which included lots of veggies. My Mom wouldn’t have it any other way lol.
(APR): My mom is the same way! Do most people know you have dermatographia, or do you keep it to yourself? What do others think of it?
(MH): Most people I know are aware that I have dermatographia. I am absolutely not ashamed of it. However initially, before diagnosis, I was very concerned as to what it could possibly be. Other people think the condition it cool. They often times wonder if they too can “draw” on themselves.
(APR): Are you embarrassed by it, proud of it, or indifferent to it?
(MH): I am not embarrassed by my dermatographia. I have a better understanding of the condition and I am proud of it. I like the idea of be a little different from the rest.
(APR): Me too! It’s cool to be unique ;’) Is there anything else you’d like to know about dermatographia?
(MH): I would like to know if the condition can suddenly go away? Do most people have it for the remaining of their lives. Does it present to be a problem during stressful situations such as giving birth?
(APR): I have heard that the condition can suddenly go away, especially in our 40’s or 50’s. But this doesn’t always happen–everyone’s condition manifests at different times in their lives and for different periods of time. As far as I know it does not present a problem when giving birth. I know stress can exacerbate the condition, but the histamine response gets exhausted after a certain period of time/stimulation, so I don’t think it would last long enough to cause any issued during birth.
Has anyone with dermatographia given birth? Please comment below. Also, I’d love to hear from more people with hypothyroidism and dermatographia!
Thanks Melissa!
All photos courtesy of Melissa Hayes.
14 Comments
Lee
on May 23, 2014 at 10:59 amThis is such an interesting, educational and comforting site!
In my case the condition developed in my 50’s. I’ve taken thyroid supplements since my 30’s, both Levoxyl and generics.
It seemed to appear out of the blue– one day at the gym I noticed large red welts had suddenly appeared on my arms. It looked as if I had poison ivy. I thought I’d gotten some weird contagious rash but, by the time I got home, my arms looked normal. It was after that that I slowly realized I could actually write on the underside of my arms.
Then one night, on vacation in Arizona, my torso suddenly itched like crazy after I went to bed. It was crazy. The scratching made raised red lines all over my stomach and shoulders. I thought it must be an allergic reaction to the hotel’s detergent. Moisturizer seemed to mitigate the trouble so I also thought it could be the dry desert climate.
The nighttime itchiness still occurs about once a week. Remembering to use moisturizer on my torso before bed has definitely reduced the troubles. The itchiness seems random with no obvious links to specific foods or stress levels.
I had melanoma surgery and was very concerned about my skin’s reaction to a surge rical incision but there was none. Zero. I think it might be because I seem to react more to abrasive touches.
My guess is that there’s more linkage to be discovered and I cantvwaitbtobread more stories. My issue doesn’t really affect my daily life and most people don’t know I have it.
Ariana Page Russell
on May 26, 2014 at 9:21 pmHi Lee,
Thanks so much for sharing your story! This link between dermatographia and thyroid meds keeps popping up–it’s definitely something to investigate. And my skin is the same; it did not react when I had melanoma surgery, but flares up with a scratch. Major things don’t seem to be as bothersome as little things, which leads me to believe that giving birth wouldn’t be an issue (much like surgery).
One thing that really helps me is to wash my skin with almond oil in the shower (it doesn’t strip my skin like soap does), then moisturize with the oil again before exiting the shower (with the water still running so the oil isn’t too heavy). Moisturizing is so important!
Thanks again for writing.
-Ariana
Beth
on May 26, 2014 at 10:42 pmI developed mine in my late 30’s, and have never taken medications for thyroid or had surgery. I’ve found that a small amount of whipped shea butter or Aquafur rubbed into the area, once it reaches itchy stage, immediately stops the itch and takes the warmth out.
I have also begun making my own shampoo/body wash using castille soap, almond oil, and coconut oil. It has helped stop the use of lotions, and dried out skin, which has helped my dermatographia a lot!
Ariana Page Russell
on May 26, 2014 at 11:02 pmHi Beth,
Thanks for writing! I also have never taken thyroid meds, but I did take Accutane as an adolescent. My dermatographia showed up in my teens, but is getting better now that I’m in my thirties.
I’d love to hear about your body wash recipe. As I said above, I use almond or coconut oil to wash my body, and to moisturize, and have noticed a huge improvement in my symptoms. It’d be interesting to compare notes! My email is arianapage@gmail.com
Thanks!
Ariana
Kell Clark
on May 27, 2014 at 5:27 amI’ve had it from birth (now 28), my father had it from birth aswell, I could see it causing some irritation through being pregnant and child birth completely depends on how bad you have dermatographia.
I’m looking at getting a tattoo has anyone else had one with the condition?
Ariana Page Russell
on May 27, 2014 at 6:55 amHi Kell,
I have tattoos and have never had a problem. You can read more about it here: http://skintome.arianapagerussell.com/personal-adornment-tattoos-and-dermatographia/
Thanks for writing!
Chris
on July 7, 2014 at 4:47 pmMy wife has many tattoos, it never seemed to be an issue during or after.
Chris
on July 7, 2014 at 4:42 pmMy wife has a pretty advanced version of dermatographia. She’s never been too insecure about it, though whenever she scratches or rubs herself she always gets the “What’s happening to your [insert body area]?!” Even from people who are aware she has the condition. We’ve occasionally had fun with it and employed it as a “party trick”. Before she gave birth to our children we used to wonder if it wasn’t somehow caused/agitated by her recreational drug use when she was younger, or later from medication associated with her bi-polar disorder. But, I can tell you with a level of certainty based on our two children, ages 7 and 4 that there’s at least a part of this that is hereditary, as both of our children have varying degrees of it. In them, it tends to show up the worst when there is an injury. We always have to hold our reaction for a good 15-20 minutes while the swelling from the dermatographia subsides to determine the true nature of the injury. If everything was based on first sight we’d be rushing to the hospital pretty constantly . . . and needlessly. We’ve had to calm other’s gasps and panic who’ve witnessed the immediate aftermath of said injuries many times. In concerns to the question of giving birth? Everything was fine. I don’t remember any notable differences in the skin. It was as it had been and continues to be. Although I will say that about a year and a half after the birth of our second child, our son, my wife’s condition did seem to intensify for a period of several months but eventually returned to normal. I’ve come to the conclusion that if you live with dermatographia, the best thing to do is embrace it and love it. There’s nothing to be embarrassed by, you’re truly unique and that’s something to be celebrated.
Ariana Page Russell
on July 8, 2014 at 11:41 amHi Chris. Thanks so much for writing! I’m glad to hear your wife had no issues with giving birth, and it’s interesting to know that your kids have it as well. I wonder if my children (if I have any) will develop dermatographia! My mom and dad don’t have it–in fact, I’m the only one in the family that does. Dermatographia is so weird! Cool, but weird. And yes, something to celebrate. Good to hear from you!
Michelle
on September 29, 2014 at 7:27 pmI have had dermographia all my life, I’m 22. I gave birth to my lovely daughter on Halloween in 2012. My husband and I didn’t notice any increased symptoms (or reduction for that matter). I delivered vagionally with an epidural and had an episiotomy. I did notice that it took a while to recover from the bruising down south and episiotomy stiches…maybe 2 months. I can’t remember how that measures up to the norm. Hope that helps, Melissa!
Ariana Page Russell
on October 1, 2014 at 1:13 pmThanks for the information Michelle! And congratulations on your successful birth ;’) Glad to hear it all went well. I’ve also wondered if having dermatographia affects our scaring and healing from surgery. My scars take a long time to heal! It might all be related…
Laura Holden
on February 2, 2017 at 10:55 pmI have had dermographia since mid 20’s 25/26 now turning 30. It has its good days and bad. I take hydroxazine (however you spell it) and started tumaric green tea milk thistle this week as I have read it will help well so far I feel I’m itching more maybe too much I don’t know but I await the day this disappears. I will have to say it’s miserable to me. I have no clue what would have made it start I don’t recall any medications besides pain meds from the dentist and I was smoking pot at that point in my life. I’m recently married a year now and of course it’s so agrivating when everything brakes out with touching. we are at the point of trying for a child so I’m off of birth control pills and I thought I read somewhere on a site with some woman when pregnant this disease goes away but reading above I haven’t read that. Scared it will be irritable and a miserable pregnancy and sad that my children may get this 🙁 . I was adopted so I have no history of my biological parents. I really truly just can’t wait for the day I wake up rub, touch, or scratch up against something and not break out in a itchy hive and I can have a normal life again. It really set me in a depressed stage having this for so many years now and not having it disappear. It’s stressful on a relationship and miserable for me to do everyday activities. If any one has a miracle treatment they use please let me know and positive notes for pregnancys, have any woman had it disappear? Thank you!
Elizabeth
on February 16, 2017 at 10:51 amI have had dermographia for about 4 years now and I am currently 33. I cannot live without taking antihistamines because the itching and swelling are pretty severe. However, with meds I have almost no itch, redness or swelling. I do not have any links to other drugs or diseases during the same time I developed dermographia. The only link that is possible for me would be stress.
I had a strange reaction about 2 years ago when I tried to follow all the guidelines from online forums of “curing” dermographia. I was running everyday eating healthy foods and doing yoga. About a week into this trial my legs, feet and hands swelled up to a point where I could not bend my fingers, my legs were so big I couldn’t put my pants on and I couldn’t wear any of my shoes. It was crazy! I went to the emergency room because the doctor I work for said this could be a serious problem but in the end it was a reaction to trying to be healthy, eat healthy and wean myself off of the antihistamines. Needless to say I have never tried to stop taking Zyrtec again. Coincidentally the dermatologist I went to who diagnosed the skin condition also lives with dermographia and has for 14 years. She said the swelling in my hands, legs and feet was a severe internal reaction where my body swelled to protect my joints and this was likely linked to the dermographia. She told me that Zyrec is absolutely safe through any life events including pregnancy and nursing and that I should never try to stop taking these meds.
I am currently 21 weeks pregnant and have had slightly elevated skin itching but I think that is normal for many pregnant women during the 2nd trimester. There are plenty of things to worry about during pregnancy but my dermographia is not one of them! I expect (hope) to have a completely normal pregnancy and delivery and would be happy to talk in more detail with any women who are expecting or are trying to conceive.
Janet
on September 11, 2017 at 8:07 pmApparently in was born with it. I can’t remember not having reactions. I’ve had two kids, and both my kids have dermagraphism. Giving birth wasn’t a problem at all.